trikafta log 2020.03.15.0205
i've done my evening albuterol, pulmazyme, trikafta. church is tomorrow at 1030, so i'm getting up at 9. i need to fill out papers to turn in monday morning at the open door health clinic. i went grocery shopping today. made a few impulse buys. spend 120 dollars. over twice as much as i usually spend, but i'm not worried. i can feel that my brain doesn't function as it should. a part of that is that i don't care, though i know i should.
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trikafta log 2020.03.14.1340
i didn't make any log yesterday. i didn't eat much, didn't do my morning treatments. took my morning and evening trikafta when i needed to. i feel really miserable. even typing this out is physically difficult and full of typos. my left hand is very unstable. had a good talk with mother yesterday, involving the words 'no one can help you'. and that's what i wanted to hear, obviously. today i've taken my morning trikafta, i'm doing my albuteral and pulmazyme. i did my evening treatments yesterday. i feel miserable, and i'm pretty sure it's a product of serotonin syndrome brought on by trikafta, though i hesitate to alter that treatment any time soon.
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trikafta log 2020.03.13.0113
i've done my evening albuterol, saline, pulmazyme, trikafta, and eight units basaglar.
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trikafta log 2020.03.13.1410
i woke up around 1245. took my morning trikafta, had breakfast, took my azythromax, iron pill, dekasplus, omega 3 oil, and took a shower. i still have to take my insulin and do my treatments.
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trikafta log 2020.03.12.0240
i've done my evening albuterol, pulmazyme, and saline, taken 8 units basaglar, though there is corrective humalot i haven't taken, so i think i should be high tomorrow morning, and i've taken my evening trikafta. i've been cleaning a bit, organizing my room more. it had occurred to me that i sit in one place all day and that i've only cleaned my room enough for me to sit in that one place. there's quite a bit i need to throw away and not all of it is garbage, per se. things i've been holding onto that i know that i don't need to. i've been reflecting on things that as an adult, i should know, and i'm capable of learning. but these are things that should have been taught when i was a child, and being older now, they're much more difficult to learn, it will take more time, effort, and energy than it would have. it's an important bit of self evaluation. there is both the realization that i'm able to improve myself and my environment, but also an irritation of asking why wasn't i taught this as a child? i still feel it's a valid question, and one which will require more insight still.
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trikafta log 2020.03.11.1107
i woke up at 10, i've taken 8 units basaglar and my morning trikafta, i'm about to do albuterol, pulmazyme, and saline nebulizer.
trikafta log 2020.03.11.0109
i've done my evening trikafta, albuterol, pulmazyme, saline solution, i've taken corrective humalog and 8 units basaglar. i've been talking with someone about my anxiety, someone who is familiar with the medications i'm on, and i've been told that i'm having similar problems to other people on this medication, and that there is likely a direct medical causality. let me read you some of the texts we've exchanged.
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trikafta log 2020.03.10.1536
i woke up around 1045. took my morning trikafta, 8 units basaglar insulin, albuterol, pulmazyme, saline solution. had breakfast, had some lunch, i've taken some insulin for breakfast, not for lunch yet. i've felt out of it all day. my head is foggy. i'm eating plenty of food. i don't know what's wrong with me. didn't go to recorder practice, i didn't feel fit for purpose. i still need to find an eye doctor in eureka, fill out the new patient papers for open door clinic. finish the minecraft video i'm nearly done with.
trikafta log 2020.03.10.0236
i made it to the doctors office, she tested my eyes and gave me a referral to an eye doctor. i went to the eye doctors office and i can become a new patient in may. i went to a second office a few blocks away and they were out for a month. i think i need to look in eureka for a doctor who can see me some time this week and write prescription lenses, so that i can get a drivers permit. as it is, barbershop choir was a good time for all involved. i went grocery shopping after. when i got home, i took some corrective humalog, and for the first time in a while i took basaglar insulin, 8 units. i also took my evening trikafta, did albuterol and pulmazyme. then i did the unthinkable mistake in downloading two free games off of steam related to half life 2. one was called half life year long alarm, took around a half hour. the other is called entropy zero. it is amazingly made, very engaging. i'm just stuck at one point, i may have to look up a guide later. it's later than i intended. i'm setting an alarm for 10.
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trikafta log 2020.03.09.1208
i had a difficult night. after making the video i had two more instances where i became very dizzy very fast and thought i was having a panic attack. there's a cat in the attic making a lot of noise and that didn't help the situation at all. i had a dream last night that was so strange it's kind of worrying me. i don't even know how to describe it. i feel really off today. i woke up at 9, i've taken my morning trikafta, done albuterol and hypertonic saline, and i have a doctors appointment down the street at 130 to get a referral to an eye doctor.
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trikafta log 2020.03.09.0044
i was having a nice day until a few minutes ago. watched the two movies i brought to movie night. people seemed to like them. i got home, took my evening trikafta and started albuterol. i suddenly felt very dizzy, as though i were having a panic attack, so i rushed to the bathroom. it subsided after a moment, but i still feel a little out of it, and a bit shaken. my blood glucose was around 400 when i got home to i took 3 units of humalog. i did a pulmazyme, and i still need to to take the trash bins down to the sidewalk, then i'm going to bed.
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trikafta log 2020.03.08.1454
i woke up this morning and took trikafta, did albuterol, went to church. this evening is movie night, i always enjoy those. i'm going to bring a treat, i made some cold brew coffee. i'll see if i can finish the minecraft video before then and upload it.
trikafta log 2020.03.08.0106
i've done my evening trikafta, albuterol and pulmazyme, and i'm working on editing a minecraft video for upload tomorrow. i'm going to bed now to get up for church tomorrow.
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trikafta log 2020.03.07.1115
i woke up a little before 10, took my morning trikafta, i'm about to do my morning treatments and some gaming. i should also spend some time today putting together the video on the minecraft project i've been working on, though i can't really guarantee anything at the moment.
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trikafta log 2020.03.070114
if you've seen my most recent video of game play, you'll know i was having an off day. my legs werre cramping very painfully, i had two glasses of salt water to drink, thinking it was due to a lack of saline, but it was solved with a magnesium pill. even after that, i felt poorly, a bit out of breath and as though i were having a low blood glucose, even though my number is currently around 180. i then did albuterol, pumlazyme, and tobi. earlier today, i went down to the family clinic and scheduled an appointment for monday to get a referral to an ophthalmologist to get proper glasses to go back to the dmv for a drivers permit. i've also very nearly completed the large minecraft project i've been working on, and it continues to surprise me the emotional effect it has on me for reason i'm not able to discern. it feels like there's something within it that i can't see but i somehow know about. i still don't claim to understand it. i'll see if i can finish it tomorrow and edit together a video to upload.
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trikafta log 2020.03.06.1117
i woke up at 930, my blood glucose was 280, so i took three units of corrective humalog, had a cup of coffee, and i'm about to do my treatments while gaming. i also thought i should add that i had such aa crazy dream. it started off pretty normal. i was making a cake for some people who i know in real life, as a sort of apology for something i had done. i over complicated the cake, though, and it fell apart. then i was in a room with other people, and we were trying to leave, though there was something actively stopping us, and it's really crazy what it was doing. people who know what a video game level editor is will understand what i'm explaining a little better. it was something like, to get out of the room we'll climb out the window, well now the floor under the window i a corrosive acid, so now someone doesn't have feet. so we'll get out through the ceiling, well now we're tangled in the electric wiring. smash through the wall, now there's a hole in the floor on the other side. as we were able to get further out, the traps being set for us, i don't know kept directing us? trying to get onto a neighboring roof? well now that person has a row of cactus plants along the edge, don't touch them they're poison. trying to order an airlift? well now the town has a spider infestation and the webs are covering the streets. it was strange because of how specific everything was and how it held a continuity for so long. it was very structured storytelling, it didn't phase in and out of logic as dreams are supposed to. i'm also trying to figure out how i was having a second dream at the same time? i don't understand it. i was playing minecraft, alternating between mining diamonds and smelting netherite, and that part of my brain having that dream was able to look over at the other part of my brain having the other dream and was bored with it? like it was overstated? i don't know, it was very strange.
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trikafta log 2020.03.06.0159
as indicated by the previous video, i got a new game called Nier Automata and it turns out i didn't need to do this because it's a fun game that requires a lot of time to go through. ash shown in the previous video, i've done my albuterol, pulmazyme, and tobi, and i've done a dose of salmeterol and my evening trikafa. in my defense in buying the game, i'm going to stream the entire game here on youtube, and i'm going to limit my play to when i do treatments.