"News Reports" on Myalgic Encephalomyelitis (M.E.) & Chronic Fatigue Syndrome (CFS)
MyalgicEncephalomyelitis
- 13 / 14
1
Child injured by Enterovirus with Acute Flaccid Myelitis (AFM) - The Polio-like Disease - WYFF News 4
2:52

Child injured by Enterovirus with Acute Flaccid Myelitis (AFM) - The Polio-like Disease - WYFF News 4

Original YouTube Video: https://youtu.be/3Byb98A9hLo?si=89o4K4aVbM5qGgMJ The Center for Disease Control is warning parents to be on the lookout for a rise in a Polio-like virus that is paralyzing children.
2
M.E. Patient Kate Stanforth talking about disbelief in Myalgic Encephalomyelitis (M.E.) and the symptom of Muscle Weakness
2:31

M.E. Patient Kate Stanforth talking about disbelief in Myalgic Encephalomyelitis (M.E.) and the symptom of Muscle Weakness

3
Late M.E. Sufferer Sophia Mirza on ITV News Meridian with Stacey Poole
11:29

Late M.E. Sufferer Sophia Mirza on ITV News Meridian with Stacey Poole

4
M.E.: Lives devastated - and sufferers told it's made up - Channel 4 News with Krishnan Guru-Murthy
12:12

M.E.: Lives devastated - and sufferers told it's made up - Channel 4 News with Krishnan Guru-Murthy

Original Link: https://youtu.be/pobf0RPlJuw?si=S0Fw-bDeBj0ShP3j
5
Inquest begins into the death of 27-year-old who fought M.E. for years - Channel 4 News
3:30

Inquest begins into the death of 27-year-old who fought M.E. for years - Channel 4 News

YouTube Link : https://youtu.be/YsNOhknxo1w?si=gAxVrBw5rxQ6iUIz
6
ITV News Inquest Result of M.E. Sufferer Maeve Boothby-O'Neill
5:17

ITV News Inquest Result of M.E. Sufferer Maeve Boothby-O'Neill

ITV News Website: https://www.itv.com/news/westcountry/2024-08-09/woman-died-from-malnutrition-due-to-me-coroner-finds
7
BBC Spotlight Inquest of ME Sufferer Maeve Boothby-O'Neill. Coroner Deborah Archer misleads BBC declaring death was caused by anything other than intentional Starvation & Dehydration after refusing PN Feeding by Royal Devon & Exeter Hospital
7:34

BBC Spotlight Inquest of ME Sufferer Maeve Boothby-O'Neill. Coroner Deborah Archer misleads BBC declaring death was caused by anything other than intentional Starvation & Dehydration after refusing PN Feeding by Royal Devon & Exeter Hospital

Website: https://www-bbc-com.cdn.ampproject.org/v/s/www.bbc.com/news/articles/czrgmdv4z0go.amp?amp_gsa=1&amp_js_v=a9&usqp=mq331AQIUAKwASCAAgM%3D#amp_tf=From%20%251%24s&aoh=17233345679802&csi=1&referrer=https%3A%2F%2Fwww.google.com&ampshare=https%3A%2F%2Fwww.bbc.com%2Fnews%2Farticles%2Fczrgmdv4z0go Discrimination: your rights https://www.gov.uk/discrimination-your-rights/how-you-can-be-discriminated-against#:~:text=direct%20discrimination%20%2D%20treating%20someone%20with,characteristic%20at%20an%20unfair%20disadvantage Direct Discrimination - treating someone with a protected characteristic less favourably than others (Yes, this is a common theme from the medical profession - atmosphere of disbelief & denial, dismissive attitudes, preconceived views fueled by prejudices because of previous conflation with mental illness and the term "functional disorder" spread by misinformation & disinformation coming from psychiatry & neurology) Indirect Discrimination - putting rules or arrangements in place that apply to everyone, but that put someone with a protected characteristic at an unfair disadvantage (Yes, using flawed protocols designed for something else and not M.E.. They changed protocols for Alice Barrett another M.E. Patient at Devon & Exeter Hospital afterwards; which is an acknowledgement, that the previous protocols being used, were incorrect for M.E. Patients) Gross Negligence Manslaughter (GNM) https://www.cps.gov.uk/legal-guidance/gross-negligence-manslaughter#:~:text=The%20offence%20of%20gross%20negligence,The%20offence%20is%20indictable%20only. In order to prove the offence, the prosecution must therefore establish the following elements: a) The defendant owed a duty of care to the deceased; b) By a negligent act or omission the defendant was in breach of the duty which he owed to the deceased; c) The negligent act or omission was a cause of the death; and d) The negligence, which was a cause of the death, amounts to gross negligence and is therefore a crime; (Yes, you should know you shouldn't starve people to death and they acknowledged this by attempting nasal gastric feeding at first) Record number of workers resigned from their posts at Royal Devon and Exeter NHS Foundation Trust https://www.teignmouth-today.co.uk/news/record-number-of-workers-resigned-from-their-posts-at-royal-devon-and-exeter-nhs-foundation-trust-626248 NHS boss quits over 'unachievable' funding plan https://www-bbc-com.cdn.ampproject.org/v/s/www.bbc.com/news/articles/c6pprpx3l1po.amp?amp_gsa=1&amp_js_v=a9&usqp=mq331AQIUAKwASCAAgM%3D#amp_ct=1723337239791&amp_tf=From%20%251%24s&aoh=17233370434753&referrer=https%3A%2F%2Fwww.google.com&ampshare=https%3A%2F%2Fwww.bbc.com%2Fnews%2Farticles%2Fc6pprpx3l1po Suzanne Tracey announces decision to step down as CEO of the Royal Devon https://www.royaldevon.nhs.uk/news/suzanne-tracey-announces-decision-to-step-down-as-ceo-of-the-royal-devon/
3 comments
8
"M.E. Sufferer Maeve Boothby-O'Neill dies from Malnutrition, "Our Daughter's Death Was Preventable" at the hands of NHS Gross Negligence - Sarah Boothby
14:38

"M.E. Sufferer Maeve Boothby-O'Neill dies from Malnutrition, "Our Daughter's Death Was Preventable" at the hands of NHS Gross Negligence - Sarah Boothby

YouTube Link: https://youtu.be/ibTCzXcKhpk?si=Txdgf_QRzIKvg-lu The mother of 27-year-old Maeve Boothby O’Neill, who died from malnutrition due to severe ME, says that her death was 'wholly preventable' and is calling for 'institutional change' in the care of ME patients. Broadcast on 14/08/24 Join Susanna Reid, Ed Balls, Kate Garraway, Richard Madeley, Charlotte Hawkins and Sean Fletcher every weekday on ITV from 6am until 9 every weekday!
9
UK medical authority & then later NICE attempting to redefine Myalgic Encephalomyelitis (M.E.) under a Chronic Fatigue Syndrome (CFS) FATIGUE STATE criteria even though it is stated that it is separate entity requiring a separate definition in CFS RPT
2:08

UK medical authority & then later NICE attempting to redefine Myalgic Encephalomyelitis (M.E.) under a Chronic Fatigue Syndrome (CFS) FATIGUE STATE criteria even though it is stated that it is separate entity requiring a separate definition in CFS RPT

Report of the joint working group of the Royal Colleges of Physicians, Psychiatrists and General Practitioners https://me-pedia.org/wiki/Report_of_the_joint_working_group_of_the_Royal_Colleges_of_Physicians,_Psychiatrists_and_General_Practitioners Chronic Fatigue Syndrome. Report of a joint working group of the Royal Colleges of Physicians, Psychiatrists and General Practitioners on chronic fatigue syndrome, or the Joint Royal Colleges' Report is a British report published in 1996. The report "aimed to provide the information necessary for knowledge-based care and indicate what facilities and services provisions were required for the management of CFS in primary health care." The report also provided a summary of research and stated that "well-defined research endeavours and clinical trials" were needed for Chronic Fatigue Syndrome. Chronic Fatigue Syndrome Summary of a Report of a Joint Committee of the Royal Colleges of Physicians, Psychiatrists and General Practitioners (1996) https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5401495/ 2.6 Controversy has been heightened by the recent prominence of the diagnostic label ‘Myalgic Encephalomyelitis’ (M.E.) in the United Kingdom. This was originally used to refer to epidemic outbreaks of unexplained neurological symptoms and signs (Yes) but came to be applied to sporadic cases of severe and prolonged fatigue (Wrongly) Widely publicised claims arising from immunological and virological research gave medical credibility to the ‘new’ syndrome, but with further knowledge it became inevitable that the label of ‘M.E.’ could not be accepted by mainstream medical opinion. (Denial, Arrogance, Ignorance & Incompetence) The precise reasons for this disillusion will be outlined later, but the result has been a difference between popular and professional opinion on the subject, which has occasionally been intense. (Neurology & Psychiatry have contributed to causing this) 2.7 Widespread publicity appears to have led to over-diagnosis of M.E. by some doctors (Correct), allied to frequent self-diagnosis by some patients (Many a patient may have actually worked it out, that they suffer from the Neurological Disease) At present we believe that the label of M.E. is *being used inappropriately* to cover a variety of diverse conditions and situations. (Correct) 3.4 Some would prefer (Individuals who actually suffer from the *acute onset* Neurological Disease) to continue to use the term M.E.. (Correct) It has been suggested that ‘the merits of the term M.E. are that it emphasises the physical aspects of the condition’. (Indeed) However, "Encephalomyelitis" describes a distinct pathological process of inflammation of the brain and spinal cord. (Correct) The term M.E. thus erroneously endorses (No it legitimately describes the pathology involved with the *acute onset* enteroviral disease) the existence of a specific pathological process for which in the context there is no evidence. (There was evidence for this process in a 1970 paper within The Lancet but it was clearly ignored or overlooked) ENCEPHALOMYELITIS RESEMBLING BENIGN MYALGIC ENCEPHALOMYELITIS - Innes (1970) https://www.thelancet.com/journals/lancet/article/PIIS0140-6736(70)91097-4/fulltext (Four cases of *encephalomyelitis* resembling benign myalgic encephalomyelitis are reported. A Coxsackie B2 virus was isolated from the cerebrospinal fluid in one case and an echovirus type 3 virus from the fæces and the cerebrospinal fluid in another. Serological tests indicated Coxsackie B2 and Coxsackie B5 infection in the other two cases) Patients may wish to keep a particular term (Yes patient's who actually suffer from M.E. might like to keep the term for the disease they suffer from) because only with that label are they eligible to call upon the welfare state for help. We agree with the recent Westcare Report that this is understandable (Indeed) but not satisfactory. We are unaware of any satisfactory definition of M.E., and doubt whether an operational definition of M.E. is either possible or appropriate. (Dr. Elizabeth Dowsett's original London Criteria, existed in 1994) Summary The term Chronic Fatigue Syndrome (CFS) can be operationally defined for clinical and research purposes. The term CFS also allows clinicians to communicate effectively with patients and to propose a management plan while admitting that our understanding of the syndrome is incomplete. The term M.E. and similar terms are used to cover a wide variety of clinical and other complaints. (Admitting that M.E. refers to something else; rather than Chronic Fatigue Syndrome) They cannot be used for systematic research and may mislead patients into believing they have a serious and specific pathological process affecting their muscles and brain. (Which is the case in M.E. but may not be in a patient with an *unexplained* Fatigue-defined illness?) The value of research into these syndromes will be enhanced if future studies use standardised criteria for CFS, including a measure of severity, for the purposes of comparison.
10
Dr. Clare Flemming has been hurt by the hostile attitudes of other doctors towards M.E.. It's been a *stuck record* of asking for further research, services, recognition since 1994. - ITN News with Trevor McDonald (A.I. Remastered Sound)
2:11

Dr. Clare Flemming has been hurt by the hostile attitudes of other doctors towards M.E.. It's been a *stuck record* of asking for further research, services, recognition since 1994. - ITN News with Trevor McDonald (A.I. Remastered Sound)

11
Dr. Charles Shepherd talking about the conflation of Chronic Fatigue Syndromes (CFS) which is *unexplained* fatigue-defined illnesses with "Epidemic" Myalgic Encephalomyelitis (M.E.) which is a Neurological Disease. Leads to patient confusion.
2:31

Dr. Charles Shepherd talking about the conflation of Chronic Fatigue Syndromes (CFS) which is *unexplained* fatigue-defined illnesses with "Epidemic" Myalgic Encephalomyelitis (M.E.) which is a Neurological Disease. Leads to patient confusion.

YouTube Link: https://youtu.be/0uUxL9My1bc?si=b6Xn9riJzSFHSfVT
12
Myalgic Encephalomyelitis (aka Enteroviral Encephalomyelitis) M.E., Melvin Ramsay, Chronic Fatigue Syndromes (currently wrongly being called 'ME/CFS') and Long Covid on BBC Breakfast with Ben Thompson & Sally Nugent
14:51

Myalgic Encephalomyelitis (aka Enteroviral Encephalomyelitis) M.E., Melvin Ramsay, Chronic Fatigue Syndromes (currently wrongly being called 'ME/CFS') and Long Covid on BBC Breakfast with Ben Thompson & Sally Nugent

Long segment about Myalgic Encephalomyelitis (M.E.), CFS (currently being called 'ME/CFS') & Long Covid on BBC Breakfast (15 mins) includes : interviews with Dr. Binita Kane, Dr. William Weir, Karen Hargrave & Oonagh Cousins Mentions symptoms, severity, history, Melvin Ramsay, psychological framing, NICE guidelines, problems receiving care for severe patients, debunked Graded Exercise and pacing.
The One Show with Matt Allwright & Alex Jones on "Hysterical Collapsing Children spread by social contagion" in a field in Hollinwell according to Simon Wessely. Interviewed with Mike Mosley.
4:42

The One Show with Matt Allwright & Alex Jones on "Hysterical Collapsing Children spread by social contagion" in a field in Hollinwell according to Simon Wessely. Interviewed with Mike Mosley.

Hollinwell Incident - Wikipedia https://en.m.wikipedia.org/wiki/Hollinwell_incident The Hollinwell incident refers to an unexplained event in July 1980 when around 300 children suffered fainting attacks, nausea and other symptoms. The incident happened at the Hollinwell Showground in Kirkby-in-Ashfield, in Nottinghamshire, England, and the exact cause has never been determined. The two leading theories relate to mass hysteria and the use of pesticides in nearby fields. Background In 1980, the Hollinwell Show, an annual event at the Hollinwell Showground near Kirkby-in-Ashfield, took place on Sunday 13 July.[1] As part of the event the Forest League of Juvenile Jazz Bands decided to hold a charity show, creating a Junior Brass and Marching Band competition, with entrants coming from across the East Midlands. Around 500 children from 11 marching bands were in attendance, many of them brought-in by coaches from up to 40 miles (65 kilometres) away. With the show scheduled to begin at 9 am, many of the children were tired from their journeys and nervous about performing. The Incident At around 10:30, band members began to collapse without any apparent explanation and the fainting seemed to be contagious. Children began "[falling] down like nine pins" according to one witness and soon the numbers of ailing children reached into the hundreds. Symptoms also included vomiting, sore eyes and throats, and dizziness. One girl described her symptoms: "My legs and arms felt as if they had no bones in them and I had a bad headache". The estimated number of victims was around 300, including children, adults, and babies,and 259 people were taken to four nearby hospitals including the Queen's Medical Centre in Nottingham, with nine children kept in overnight. A Fortean Times investigation reported that several horses were also taken ill, but admits that any link to the incident is conjecture. Cause The exact cause of the widespread illnesses is still disputed. Initial investigations by Ashfield District Council looked into a variety of possible causes, including contaminated water supplies, food poisoning, radio waves, and crop spraying of the nearby fields. The use of pesticides became the favoured explanation, with a 2003 episode of the BBC news and current affairs programme Inside Out revealing the local use of the pesticide tridemorph. Banned by the British government in 2000, tridemorph was discovered to be a harmful substance described by the World Health Organization (WHO) as "moderately hazardous". However, these investigations took place over 20 years after the event and disagree with the official findings. The official inquiry did reveal the use of Calixin, a pesticide that contains tridemorph, but it was not considered to be dangerous at the time. The official inquiry ruled that mass hysteria was the likely cause, with the symptoms experienced by the children demonstrating some of the characteristics of such an outbreak. People present at the event were adamant that the symptoms were real and not the result of imagination or hysteria. They also expressed their frustration at never having received a satisfactory explanation. In 2003 the council had no plans to revisit the incident or reopen the inquiry. An episode of Punt PI on BBC Radio 4, in which Steve Punt investigated the incident, was broadcast on 24 August 2013. Prior to the broadcast, radio researchers had reached out through the Mansfield local newspaper appealing for any locals to come forward at their expected visit into the area on 25 June. They also confirmed that an official report into the incident was produced but could not be traced afterwards. This was followed by a further examination during the second episode of Mystery Map on ITV on 27 November 2013. On the 42nd anniversary of the incident at "the Fainting Field", a BBC local radio reporter created a podcast recounting the events, and investigating what could have happened by consulting a forensic science lecturer from Nottingham Trent University, who hypothesised that different cleaning products could have been used in a temporary toilet block. When combined, these could have created chlorine gas, which can produce similar symptoms to those reported.
14
Contaminated blood scandal in the United Kingdom - Inquiry Report
1:12

Contaminated blood scandal in the United Kingdom - Inquiry Report

Contaminated blood scandal in the United Kingdom https://en.m.wikipedia.org/wiki/Contaminated_blood_scandal_in_the_United_Kingdom

The One Show with Matt Allwright & Alex Jones on "Hysterical Collapsing Children spread by social contagion" in a field in Hollinwell according to Simon Wessely. Interviewed with Mike Mosley.

2 months ago
Science

Hollinwell Incident - Wikipedia

https://en.m.wikipedia.org/wiki/Hollinwell_incident

The Hollinwell incident refers to an unexplained event in July 1980 when around 300 children suffered fainting attacks, nausea and other symptoms. The incident happened at the Hollinwell Showground in Kirkby-in-Ashfield, in Nottinghamshire, England, and the exact cause has never been determined. The two leading theories relate to mass hysteria and the use of pesticides in nearby fields.

Background

In 1980, the Hollinwell Show, an annual event at the Hollinwell Showground near Kirkby-in-Ashfield, took place on Sunday 13 July.[1] As part of the event the Forest League of Juvenile Jazz Bands decided to hold a charity show, creating a Junior Brass and Marching Band competition, with entrants coming from across the East Midlands. Around 500 children from 11 marching bands were in attendance, many of them brought-in by coaches from up to 40 miles (65 kilometres) away. With the show scheduled to begin at 9 am, many of the children were tired from their journeys and nervous about performing.

The Incident

At around 10:30, band members began to collapse without any apparent explanation and the fainting seemed to be contagious. Children began "[falling] down like nine pins" according to one witness and soon the numbers of ailing children reached into the hundreds. Symptoms also included vomiting, sore eyes and throats, and dizziness. One girl described her symptoms: "My legs and arms felt as if they had no bones in them and I had a bad headache".

The estimated number of victims was around 300, including children, adults, and babies,and 259 people were taken to four nearby hospitals including the Queen's Medical Centre in Nottingham, with nine children kept in overnight.

A Fortean Times investigation reported that several horses were also taken ill, but admits that any link to the incident is conjecture.

Cause

The exact cause of the widespread illnesses is still disputed. Initial investigations by Ashfield District Council looked into a variety of possible causes, including contaminated water supplies, food poisoning, radio waves, and crop spraying of the nearby fields. The use of pesticides became the favoured explanation, with a 2003 episode of the BBC news and current affairs programme Inside Out revealing the local use of the pesticide tridemorph. Banned by the British government in 2000, tridemorph was discovered to be a harmful substance described by the World Health Organization (WHO) as "moderately hazardous". However, these investigations took place over 20 years after the event and disagree with the official findings. The official inquiry did reveal the use of Calixin, a pesticide that contains tridemorph, but it was not considered to be dangerous at the time.

The official inquiry ruled that mass hysteria was the likely cause, with the symptoms experienced by the children demonstrating some of the characteristics of such an outbreak. People present at the event were adamant that the symptoms were real and not the result of imagination or hysteria. They also expressed their frustration at never having received a satisfactory explanation. In 2003 the council had no plans to revisit the incident or reopen the inquiry.

An episode of Punt PI on BBC Radio 4, in which Steve Punt investigated the incident, was broadcast on 24 August 2013. Prior to the broadcast, radio researchers had reached out through the Mansfield local newspaper appealing for any locals to come forward at their expected visit into the area on 25 June. They also confirmed that an official report into the incident was produced but could not be traced afterwards.

This was followed by a further examination during the second episode of Mystery Map on ITV on 27 November 2013.

On the 42nd anniversary of the incident at "the Fainting Field", a BBC local radio reporter created a podcast recounting the events, and investigating what could have happened by consulting a forensic science lecturer from Nottingham Trent University, who hypothesised that different cleaning products could have been used in a temporary toilet block. When combined, these could have created chlorine gas, which can produce similar symptoms to those reported.

Loading comments...