YouTube Link: https://youtu.be/ibTCzXcKhpk?si=Txdgf_QRzIKvg-lu The mother of 27-year-old Maeve Boothby O’Neill, who died from malnutrition due to severe ME, says that her death was 'wholly preventable' and is calling for 'institutional change' in the care of ME patients. Broadcast on 14/08/24 Join Susanna Reid, Ed Balls, Kate Garraway, Richard Madeley, Charlotte Hawkins and Sean Fletcher every weekday on ITV from 6am until 9 every weekday!

The latest video in Dr Charles Shepherd’s YouTube gallery - thanks to the Dutch ME/CFS Group | 20 May 2014 May 20, 2014 https://meassociation.org.uk/2014/05/18922/ Transcript for video and additional Q&A Session https://mega.nz/file/M1RRQYrD#NhqXwQQx-HMY7CJsPqnOM_5p1V9wP8TzKQAlGt8GrVI Use of the term Myalgic Encephalopathy on the new MEA website (Dr. Charles Shepherd has postviral disability caused by "Herpes Zoster Encephalitis" and has never suffered from "Epidemic" Myalgic Encephalomyelitis aka Enteroviral Encephalomyelitis) and has been GASLIGHTING genuine M.E. Patients since the late 80's about an illness he pretended to have but does NOT and has questioned the validity of their illness and pathology over the years. Dr. Charles Shepherd has conflated CFS criterias with M.E. over the years as if they are the same thing. Charles Shepherd has one of this misdiagnosed CFS illnesses himself, after Herpes Zoster Encephalitis. They now label them, ME/CFS even though Myalgic Encephalomyelitis has absolutely nothing to do with these misdiagnosed CFS illnesses and is excluded from CFS FATIGUE STATE criterias. https://meassociation.org.uk/2010/10/use-of-the-term-myalgic-encephalopathy-on-the-new-mea-website/ The Myalgic Encephalomyelitis Association has drifted away from it's original purpose as per the founder; Dr. Melvin Ramsay. To be a support for those with the specific disease of Myalgic Encephalomyelitis (M.E.). It has changed the name of the charity itself in 2010 as the medical advisor himself claimed to NOT belief in the pathology; related to Myalgic Encephalomyelitis (M.E.). "I obviously have considerable sympathy with people who believe this illness should be called M encephalomyelitis as my own illness was triggered by a chickenpox encephalitis. But in our current state of knowledge I do not believe that M. encephalomyelitis is a correct way of describing the pathology. This is why I have advocated the use of the term M. encephalopathy - as this is consistent with the abnormalities that have been published" - Dr. Charles Shepherd "You can make a diagnosis of an acute encephalomyelitis through a combination of clinical history, examination findings and abnormalities on neurological investigations, including scans. But you do not see this combination in people with ME/CFS" - Dr. Charles Shepherd Dr. Charles Shepherd talks manipulatively. There is "no such thing" as ME/CFS. There is Myalgic Encephalomyelitis (M.E.) which is an individual who has had Enteroviral Encephalomyelitis and there is a number of CFS criterias; in which Myalgic Encephalomyelitis (M.E.) is excluded from.