Atypical Poliomyelitis (M.E.)

Atypical Poliomyelitis (M.E.)

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    "We also think it's very important that there be a new ICD-10 Code. So that we're not stuck with Myalgic Encephalomyelitis or Neurasthenia or Chronic Fatigue. This (SEID) needs it's own diagnostic criteria" - Ellen Wright Clayton
    4:35

    "We also think it's very important that there be a new ICD-10 Code. So that we're not stuck with Myalgic Encephalomyelitis or Neurasthenia or Chronic Fatigue. This (SEID) needs it's own diagnostic criteria" - Ellen Wright Clayton

    "Similarly, Myalgic Encephalomyelitis (M.E.) doesn't describe the essence of the (SEID) disorder. Although many people advocated for it, it actually doesn't apply to what we defined" - Ellen Wright Clayton
    2:38

    "Similarly, Myalgic Encephalomyelitis (M.E.) doesn't describe the essence of the (SEID) disorder. Although many people advocated for it, it actually doesn't apply to what we defined" - Ellen Wright Clayton

    Sick And Tired : "Original" Chronic Fatigue Syndrome and The CDC's Failure To Respond - Primetime Live, ABC (1996) (Auphonic A.I. Sound Remaster)
    12:45

    Sick And Tired : "Original" Chronic Fatigue Syndrome and The CDC's Failure To Respond - Primetime Live, ABC (1996) (Auphonic A.I. Sound Remaster)

    Sick and Tired - BBC Panorama (November 1999) | Documentary on the mistreatment of children with M.E. (also known as "Enteroviral Encephalomyelitis") and Chronic Fatigue Syndromes (Auphonic A.I. Sound Remaster)
    38:25

    Sick and Tired - BBC Panorama (November 1999) | Documentary on the mistreatment of children with M.E. (also known as "Enteroviral Encephalomyelitis") and Chronic Fatigue Syndromes (Auphonic A.I. Sound Remaster)

    Chronic Fatigue Syndromes, is linked to your genetics, an early study by DecodeCFS has suggested.
    1:58

    Chronic Fatigue Syndromes, is linked to your genetics, an early study by DecodeCFS has suggested.

    "Chronic Fatigue Syndromes" (Erroneously known as "ME/CFS") Delivery Plan - BBC Cornwall
    8:06

    "Chronic Fatigue Syndromes" (Erroneously known as "ME/CFS") Delivery Plan - BBC Cornwall

    "Chronic Fatigue Syndromes" (Erroneously labeled as "ME/CFS") Delivery Plan - BBC Spotlight
    3:01

    "Chronic Fatigue Syndromes" (Erroneously labeled as "ME/CFS") Delivery Plan - BBC Spotlight

    "Chronic Fatigue Syndromes" (Erroneously labeled as "ME/CFS") Delivery Plan - BBC Breakfast
    12:44

    "Chronic Fatigue Syndromes" (Erroneously labeled as "ME/CFS") Delivery Plan - BBC Breakfast

    Kara Jane's Father interviewed by Channel 5 News
    4:28

    Kara Jane's Father interviewed by Channel 5 News

    Channel 4 on The DecodeCFS Results (Chronic Fatigue Syndromes) Study with Krishnan Guru-Murthy | Nothing to do with Myalgic Encephalomyelitis (M.E.) (also known as "Enteroviral Encephalomyelitis") - 4 News, Channel 4
    9:08

    Channel 4 on The DecodeCFS Results (Chronic Fatigue Syndromes) Study with Krishnan Guru-Murthy | Nothing to do with Myalgic Encephalomyelitis (M.E.) (also known as "Enteroviral Encephalomyelitis") - 4 News, Channel 4

    Chris Ponting makes the bogus claim it's the largest genetic study of M.E. in the world | Reality: It's a study on "under-investigated" Chronic Fatigue Syndromes, using SEID and CCC Criterias, neither of which are M.E. Criterias - BBC
    6:27

    Chris Ponting makes the bogus claim it's the largest genetic study of M.E. in the world | Reality: It's a study on "under-investigated" Chronic Fatigue Syndromes, using SEID and CCC Criterias, neither of which are M.E. Criterias - BBC

    Delivery Plan is for "Under-Investigated" Chronic Fatigue Syndromes (Erroneously being labeled as "ME/CFS") | NOT for Myalgic Encephalomyelitis (also known as "Enteroviral Encephalomyelitis") which has no plan - 4 News, Ch4
    4:47

    Delivery Plan is for "Under-Investigated" Chronic Fatigue Syndromes (Erroneously being labeled as "ME/CFS") | NOT for Myalgic Encephalomyelitis (also known as "Enteroviral Encephalomyelitis") which has no plan - 4 News, Ch4

    "You can recover. I was ill for 5 years, and I can really promise you, you will get over it?" | "It wasn't as bad as your daughter" | "But you can't promise, nobody can promise!" Rest+Time!
    0:45

    "You can recover. I was ill for 5 years, and I can really promise you, you will get over it?" | "It wasn't as bad as your daughter" | "But you can't promise, nobody can promise!" Rest+Time!

    "I find all this, very depressing" | "Time is the only thing. The passage of time" - Nicky Campbell | "This Programmed Exercise idea" NO NO
    0:40

    "I find all this, very depressing" | "Time is the only thing. The passage of time" - Nicky Campbell | "This Programmed Exercise idea" NO NO

    "What do you do, in my daughters case? I mean... I wish she could be here to speak for herself? The mere feeling of water makes them so desperately sick, makes them so dizzy, like they are spinning into a hole"
    0:33

    "What do you do, in my daughters case? I mean... I wish she could be here to speak for herself? The mere feeling of water makes them so desperately sick, makes them so dizzy, like they are spinning into a hole"

    "Is there recovery Nicky? Can you recovery from this? - Robert Kilroy-Silk
    0:26

    "Is there recovery Nicky? Can you recovery from this? - Robert Kilroy-Silk

    "I feel guilty although I know it's not my fault that I'm ill. It's not my fault"
    1:09

    "I feel guilty although I know it's not my fault that I'm ill. It's not my fault"

    "Do you feel guilty?" - Robert Kilroy-Silk | "No I just feel very angry, that people just dismiss it, as a fragment of your imagination, when it's not?"
    0:17

    "Do you feel guilty?" - Robert Kilroy-Silk | "No I just feel very angry, that people just dismiss it, as a fragment of your imagination, when it's not?"

    "Do you feel guilty?" - Robert Kilroy-Silk
    0:47

    "Do you feel guilty?" - Robert Kilroy-Silk

    "Did you tell your mum to go to school?" - Robert Kilroy-Silk
    0:48

    "Did you tell your mum to go to school?" - Robert Kilroy-Silk

    "How old in your daughter?" - Jane Colby
    0:39

    "How old in your daughter?" - Jane Colby

    "People who had Multiple Sclerosis had all this. I mean they were sent to Psychiatrists, weren't they?" - Jane Colby
    0:58

    "People who had Multiple Sclerosis had all this. I mean they were sent to Psychiatrists, weren't they?" - Jane Colby

    "No one can understand, no one can understand unless they're there. It's a very difficult illness"
    2:07

    "No one can understand, no one can understand unless they're there. It's a very difficult illness"

    "How does it affect the family? What's the impact upon all the other members, who aren't ill?" - Robert Kilroy-Silk
    1:38

    "How does it affect the family? What's the impact upon all the other members, who aren't ill?" - Robert Kilroy-Silk

    "What's the affect upon you, and your relationships" - Robert Kilroy-Silk
    0:54

    "What's the affect upon you, and your relationships" - Robert Kilroy-Silk

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