Shining the Spotlight on Elijah!
Elijah is our little warrior.
Imagine having inflammation between your brain and skull, resulting in meningitis, once a week on average all your life.
Imagine the suffering.
The inflammation caused high-frequency hearing loss, and Elijah is very lucky that he hasn’t gone completely deaf and blind.
Elijah, our twelve-year-old grandson, is very lucky to be alive at all because he was born with a rare often fatal, genetic disease.
We only received the diagnosis 4 weeks ago and I have gone through a roller coaster of emotions since then.
On the one hand, I am so relieved that Elijah’s problems are finally taken seriously, and that it is caused by a very rare (one in a million) genetic disease.
And the best news is that there is medication for it.
He needs to inject himself with Anakinra every day for the rest of his life.
Immediately after his first injection, Elijah started to come to life.
Within a day, he had energy, and he was able to eat normal foods.
The change was shocking and stunning.
Click on the below link to read the rest of Grada's Blog about Elijah in full ....