Ehlers Danlos Syndrome?
Ehlers Danlos Syndrome?
Youtube Channel: https://www.youtube.com/user/physicaltherapyvideo
Website: https://bobandbrad.com/
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Bob interviews Jeannie Di Bon about Ehlers Danols Syndrome. Jeannie is a Movement Therapist specializing in Hypermobility, Ehlers-Danlos Syndrome, and Chronic Pain. She has spent over a decade of experience supporting clients with their pain management and guidance on the path to health and wellbeing. Jeannie is the author of two books and she is a writer for the Huffington Post, The Mighty, and Thrive Global on the topics of chronic illness and invisible disabilities. She also regularly presents for the Ehlers-Danlos Society at their international conferences.
Website: https://jeanniedibon.com/
Zebra App Information: https://jeanniedibon.com/products/
Books:
1) Hypermobility Without Tears: Moving Pain-Free with Hypermobility and EDS: https://amzn.to/3k7S3sh
2) Pilates Without Tears: The 5-step No Pain, No Strain Strategy to Move and Feel Great: https://amzn.to/3jNuKDI
Video Chapters:
0:00 Song Introduction
0:09 Jennie Di Bon Introduction
1:18 What You Should Know if You’re First Diagnosed with EDS
2:11 Things to Avoid if You Have EDS
3:41 Is EDS Progressive?
4:26 Should People with EDS Do Resistance Training?
7:24 Why EDS Can Cause Pain
10:19 Should People with EDS Do Pilates?
12:57 How Jeannie Di Bon Teaches Pilates for EDS
14:45 How Pilates Has a Mind/Body Connection
15:47 Nose Breathing Vs Mouth Breathing with Pilates
17:12 Mental Health Issues Associated with EDS
18:58 The Importance of Posture with EDS
20:32 Equipment Jeannie Uses with EDS Pilates
21:55 Jeannie Di Bon YouTube Channel on EDS
23:05 EDS Pilates 1 on 1 Class & The Zebra Club App Information
27:56 How to Improve Proprioception with EDS
29:57 How EDS Affects Fascia
32:00 How Nutrition Affects EDS
33:35 Connecting the Dots of EDS, MCAS and POTs
34:40 How to Find a Balance Between Over Stretching & Getting Relief from Tight Muscles With EDS
36:36 SI Joint Pain & EDS
38:56 Basic Exercises For EDS
40:06 How Often Should Someone with EDS Exercise?
41:47 CEDS & MEDS Causing Muscle Soreness
44:24 Should Someone with Hypermobility Stretch?
46:19 Jennie Di Bon Contact Information
Some of our astute followers have noticed me slurring my words.I am not drunk but working with Brad it would be justifiable. I had 6 infected cysts removed from my mouth (noncancerous) & I have residual scar tissue and numbness. I will try to do better. Thanks, Bob."
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