TeamVasculitis

It can be so easy to want to just go all in with a new friend who "gets it" when for so long you have felt alone in your rare disease or chronic illness journey. Today I talk about why you need to avoid the "too close too soon" trap and how to do that! You can find Team Vasculitis at: http://www.teamvasculitis.com https://www.instagram.com/TeamVasculitis

Meet Lauren! A Vasculitis warrior who has managed her career at a large corporation, with two daughters, under the age of 5 at the time of diagnosis, AND a rare disease that caused permanent damage to organs as she sought answers.

Kayla shares with you her journey with Vasculitis, POTS, Fibromyalgia and more... and not only how fitness helps her every day, but how it actually takes much of her pain away. Follow Kayla at: https://www.instagram.com/autoimmune_fitwarriorsoul

Do you work out? Is it safe? What if you're in a flare? When it comes to our health it can be overwhelming to figure out what's right and what will hurt you. Today Kay and I talk about how she approaches things with her clients and how she handles things herself as she navigates her own health journey. Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email Connect with Kay: Instagram: https://instagram.com/autoimmune_fitwarriorsoul https://www.bonfire.com/we-are-warriors-2/

Relationships are SO HARD! Throw in onset of a chronic illness... and WOW. Right? Today I sit down to talk with Life and Relationship Coach Ariane Olshansky about how important understanding your energy is and how to navigate onset or a flare without losing the connection and intimacy. We don't just talk about it from what the patient needs, but also how to allow the partner to process and go through all of the feelings too. This is Part One! We will be discussing Dating when you have a Chronic Illness on a forthcoming episode! Also, keep an eye out for her blog posts on the Team Vasculitis website in regards to dating and committed relationships! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email Connect with Ariane: https://www.instagram.com/arianeolshansky/ TikTok: https://www.tiktok.com/@hugsxhoneycoach Facebook Group: https://www.facebook.com/groups/587314061858313 YouTube: https://youtube.com/@arianehugsandhoney4234 LinkedIn: https://www.linkedin.com/in/ariane-olshansky-02144a46 Co-Authored book, The Transformation Within: https://www.amazon.com/dp/B0BM22KRNF?ref_=cm_sw_r_mwn_dp_KYF3H0DE7BBTH7905MHH Check this out! Link to my Singles Retreat in Costa Rica in June: https://imiloainstitute.com/project/fall-in-love-in-costa-rica/ Email: hugsxhoney@gmail.com

In this episode Dr. M shares insight, tips, and guidance on why chiropractic care is an amazing way for chronically ill people to support their bodies and to even heal. You can find Dr. M at: http://www.myfavoritechiro.com https://www.instagram.com/myfavoritechiro

Please listen with an open mind and heart. In this interview, Danielle shares her story from how vibrant and healthy she was before her second dose of the Pfizer Covid 19 Vaccine. Then the symptoms started leading to multiple hospitalizations, and permanent physical damage to her eyes among other challenges.

Welcome to EMPOWERED A series that brings to you resources to empower yourself to live a full life. Meet Sarah Hines! She helps you feel better about yourself, prioritize yourself, learn to set boundaries, enjoy life more, and know your worth is not determined by your size! She is my go to when I need a smile as I am scrolling social media and I know you will love her message as much as I do! Connect with Sarah: https://www.instagram.com/thesarahhines/ Self Love Bingo - A Game to encourage you to add more self love in your life! https://www.selfloveshines.com/self-love-bingo-opt-in Connect with the Team Vasculitis Community: https://www.instagram.com/teamvasculitis/ Never miss anything going on with Team Vasculitis: https://teamvasculitis.com/team-vasculitis-email

Like so many of us she had to fight for people to believe that something was wrong with her. She was young, health conscious, and fit - so how could she be sick, right? She shares her symptoms, journey, and more.

In the 2022 Team Vasculitis Patient Symposium, August shares his journey through Behcet's disease. His message promotes why intersectionality is so vital. As a trans, disabled, adopted, Asian American he has personal experience and insight that is incredibly powerful.

In the 2022 Team Vasculitis Patient Symposium, Felicia shares why she is so passionate about awareness and advocacy. She shares a bit about her journey through life with Granulomatosis with Polyangiitis, and give tips on how to make a difference in your life by just being honest.

In the 2022 Team Vasculitis Patient Symposium, Morgan shares her journey through choosing to adopt, why they made the choices they did and how she was led to the place that felt true, honest, accepting, and the most full of love. After being diagnosed with Granulomatosis with Polyangiitis she was worried she wouldn't be seen as an acceptable candidate, and that her ability to be a mother would be questioned.

In the 2022 Team Vasculitis Patient Symposium, Dena shares her insight on dealing with chronic illness and working. Some of the challenges she faced with ableism, lack of understanding, and lack of support. She give insight on how she has managed things and where she is going now.

In the 2022 Team Vasculitis Patient Symposium, Nicole share her insight on how to manage the demands of motherhood while navigating life with a chronic illness. After being diagnosed with Granulomatosis with Polyangiitis on Mother's Day when her children we both young, she was forced to figure out how to not only be there for her family, but also for herself in a way she could never have imagined before.

In the 2022 Team Vasculitis Patient Symposium, Holly shares her journey path to healing after being diagnosed with Granulomatosis with Polyangiitis as a teen and needing a kidney transplant. She shares nutrition, mindset, and total body health insight for anyone, but especially for those interested in being coming pregnant after diganosis.

In the 2022 Team Vasculitis Patient Symposium, Pantea shares her journey and the struggles with getting a diagnosis in Istanbul. Lack of resources and understanding is common in many countries. It took her years of fighting to receive her diagnosis Urticarial Vasculitis.

In the Team Vasculitis 2022 Patient Sympoisum Roger Hamilton-Smith discusses his process with going from a fitness competitor to sick with a potentially fatal disease -Eosinophilic granulomatosis with polyangiitis - a rare form of Vasculitis.

Apparently a skin biopsy can confirm the diagnosis in up to 94% of ANCA Associated Vasculitis cases, but it’s only performed in LESS THAN HALF (24%-44%) of cases. I don’t know about you, but I’d much rather have a skin biopsy than a lung or kidney biopsy! An additional finding was that skin lesions can give clues to severity of vasculitis. Among 1,184 patients with ANCA-associated vasculitis, those with skin involvement were more likely to have systemic manifestations of disease, more likely to have such severe manifestations as kidney, lung, and nervous system issues. As always comment below for the link to this information! This is something I have NOT been hearing most of you talk about. Did you have a skin biopsy? I had a rash, but we didn’t biopsy it. I never had any biopsies.

Here’s the quick and easy breakdown: Rituximab has a far better rate of maintaining remission than methotrexate and azathioprine. The relapse rate in Azathioprine is 29% whereas Rituximab is only 5%. Azathioprine and Methotrexate have similar induction and relapse rates. With CellCept being the lowest rate of remission among the four options. As always I can DM you with links to the studies I used as well as the American College of Rheumatology’s Official Guidelines.

Like all auto immune diseases, the cause for most is unknown.

Anti-neutrophil cytoplasmic autoantibody (ANCA)-associated vasculitis (AAV) is a group of autoimmune diseases characterized by inflammation and damage to small blood vessels. Your Proteinase 3 antibody is the best test to indicate Granulomatosis with Polyganiitis. Although a small number of GPA patients don't have this marker and are diagnosed via biopsy.