MoreToMyStory

Help me get to Johns hopkins neurosurgery in Baltimore Maryland. I am on the Florida/Alabama line and all the doctors down here have said that they would cause more harm than good.

Video with my GSD and showing what Chronic illness and pain looks like

Welcome to my channel! My name is Josie and I'm 35 years. I created this channel To bring awareness to Chiari malformation, Ehlers-Danlos syndrome, chronic illnesses, and chronic pain. I am a chronic illness and chronic pain patient and advocate for patients and their families who have problems talking to their doctors about their medical care on top of helping patients get to a place where they can advocate for themselves.