Atypical Poliomyelitis (M.E.)

Atypical Poliomyelitis (M.E.)

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    How does it affect you? - Robert Kilroy-Silk
    1:09

    How does it affect you? - Robert Kilroy-Silk

    "Prioritisation is the key, with living with M.E." - David
    1:01

    "Prioritisation is the key, with living with M.E." - David

    "What's it like to have M.E.?" - Robert Kilroy-Silk
    1:43

    "What's it like to have M.E.?" - Robert Kilroy-Silk

    "Is the government, or politicians taking M.E. seriously enough?" - Robert Kilroy-Silk
    0:31

    "Is the government, or politicians taking M.E. seriously enough?" - Robert Kilroy-Silk

    "I know what the research is, that the MRC are doing. The research is looking at patients who go to their doctor feeling TIRED. Only 1-5% have M.E., that is NOT research into M.E.. That is research into Tiredness & Fatigue" - Anne MacIntyre
    0:27

    "I know what the research is, that the MRC are doing. The research is looking at patients who go to their doctor feeling TIRED. Only 1-5% have M.E., that is NOT research into M.E.. That is research into Tiredness & Fatigue" - Anne MacIntyre

    "Do the government do enough, to provide resources?" - Robert Kilroy-Silk
    0:30

    "Do the government do enough, to provide resources?" - Robert Kilroy-Silk

    "Psychiatrists don't have all the answers?" - Peter White (Psychiatrist and Lead PACE Trial Author)
    0:18

    "Psychiatrists don't have all the answers?" - Peter White (Psychiatrist and Lead PACE Trial Author)

    Post-Exertional Syncope, Sense of Impending Doom, Persistent Viral Neuroinflammation or Post-Infectious Autoimmunity Vascular Cuffing, CNS Brain Dysfunction - Lack of Cerebral Blood Flow "M.E. Crash" explained to Psychiatrist Peter White
    1:12

    Post-Exertional Syncope, Sense of Impending Doom, Persistent Viral Neuroinflammation or Post-Infectious Autoimmunity Vascular Cuffing, CNS Brain Dysfunction - Lack of Cerebral Blood Flow "M.E. Crash" explained to Psychiatrist Peter White

    "Is that how you react doctor, oh it's one of those?" - Robert Kilroy-Silk | "Well if you say you got M.E., that means you got a persistent viral infection, or an immune dysregulation" - Peter White (Psychiatrist/Lead PACE Author)
    1:49

    "Is that how you react doctor, oh it's one of those?" - Robert Kilroy-Silk | "Well if you say you got M.E., that means you got a persistent viral infection, or an immune dysregulation" - Peter White (Psychiatrist/Lead PACE Author)

    "This is why, so many people who have M.E. or a Fatigue Syndrome end up looking for alternative treatments. The psychiatrists are trying to hijack this illness. They are trying to hijack this illness, and say it is totally a psychiatric illness"
    1:24

    "This is why, so many people who have M.E. or a Fatigue Syndrome end up looking for alternative treatments. The psychiatrists are trying to hijack this illness. They are trying to hijack this illness, and say it is totally a psychiatric illness"

    "We need research. Just cause there's no magic test for M.E. now, it doesn't mean, it doesn't exist?" - David
    0:19

    "We need research. Just cause there's no magic test for M.E. now, it doesn't mean, it doesn't exist?" - David

    "I don't like that, I am going for a second opinion?" - Robert Kilroy-Silk
    1:43

    "I don't like that, I am going for a second opinion?" - Robert Kilroy-Silk

    "Hang on Anne, is that, is that, is that... the doctor's prescription too? What Nicky has just said? Is that what a doctor, would prescribe... to deal with the illness?" - Robert Kilroy-Silk
    1:03

    "Hang on Anne, is that, is that, is that... the doctor's prescription too? What Nicky has just said? Is that what a doctor, would prescribe... to deal with the illness?" - Robert Kilroy-Silk

    "Whatever it is, er... Nicky, whatever it is... how do you treat it?" - Robert Kilroy-Silk
    0:55

    "Whatever it is, er... Nicky, whatever it is... how do you treat it?" - Robert Kilroy-Silk

    "I am not suggesting for a moment that it (M.S.) applies to your daughter, obviously?" - Peter Hudgson (Neurologist)
    0:29

    "I am not suggesting for a moment that it (M.S.) applies to your daughter, obviously?" - Peter Hudgson (Neurologist)

    "Are we clearly identifying something here Peter?" - Robert Kilroy-Silk | "Some of those at least are suffering from mild, and sometimes not so mild Multiple Sclerosis" - Peter Hudgson (Neurologist)
    1:07

    "Are we clearly identifying something here Peter?" - Robert Kilroy-Silk | "Some of those at least are suffering from mild, and sometimes not so mild Multiple Sclerosis" - Peter Hudgson (Neurologist)

    "Let's never again call it Yuppie Flu" - Nicky Campbell
    0:13

    "Let's never again call it Yuppie Flu" - Nicky Campbell

    "The name is just a word, we use words to give descriptions. You need a label, which clearly identifies a clear specific thing, that's why we have it? Our problem here, is it signifies a multitude of a different things" - Robert Kilroy-Silk
    1:19

    "The name is just a word, we use words to give descriptions. You need a label, which clearly identifies a clear specific thing, that's why we have it? Our problem here, is it signifies a multitude of a different things" - Robert Kilroy-Silk

    "Is it a problem then getting diagnosed? Is it part of the difficulty?" - Robert Kilroy-Silk
    1:19

    "Is it a problem then getting diagnosed? Is it part of the difficulty?" - Robert Kilroy-Silk

    "If you don't understand something it's very easy to cope out of it. Doctors are saying to them, you just a wee bit depressed" - Nicky Campbell
    0:41

    "If you don't understand something it's very easy to cope out of it. Doctors are saying to them, you just a wee bit depressed" - Nicky Campbell

    The doctor who seen us diagnosed her with a Post viral Syndrome. "If you got chickenpox, you got chickenpox" - Robert Kilroy-Silk
    1:12

    The doctor who seen us diagnosed her with a Post viral Syndrome. "If you got chickenpox, you got chickenpox" - Robert Kilroy-Silk

    Does this exist, M.E.? | Well I would seperate M.E. from something called "Chronic Fatigue Syndrome". Here in Britain it's very broad term, it really refers to all cases of unexplained chronic fatigue lasting anything up to 6 weeks
    1:31

    Does this exist, M.E.? | Well I would seperate M.E. from something called "Chronic Fatigue Syndrome". Here in Britain it's very broad term, it really refers to all cases of unexplained chronic fatigue lasting anything up to 6 weeks

    "Does it exist Peter?" - Robert Kilroy-Silk | "I think it's a very unfortunate name to start with, and I much prefer the terminology that I think alot of neurologists employ now: "Chronic Fatigue Syndrome(s)" - Peter Hudgson
    1:28

    "Does it exist Peter?" - Robert Kilroy-Silk | "I think it's a very unfortunate name to start with, and I much prefer the terminology that I think alot of neurologists employ now: "Chronic Fatigue Syndrome(s)" - Peter Hudgson

    "Whatever it is David, it's not... what you call a buddle of laughs, is it... this disease ?" - Robert Kilroy-Silk
    1:28

    "Whatever it is David, it's not... what you call a buddle of laughs, is it... this disease ?" - Robert Kilroy-Silk

    BBC One "Kilroy" show on "Myalgic Encephalomyelitis" and "Postviral Fatigue Syndromes" (Hosted by Robert Kilroy-Silk) (Auphonic A.I. Sound Remaster)
    38:23

    BBC One "Kilroy" show on "Myalgic Encephalomyelitis" and "Postviral Fatigue Syndromes" (Hosted by Robert Kilroy-Silk) (Auphonic A.I. Sound Remaster)

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