EB Sufferer Proves Doctors Wrong By Having A Family | BORN DIFFERENT

A WOMAN who was told that she would never raise a family due to her painful skin condition has proved naysayers wrong. Shirvani Naran, aged 34, is one of the oldest surviving people living in South Africa with her condition. She was born with a rare skin disorder called Recessive Dystrophic Epidermolysis Bullosa (EB), which causes “paper-thin” skin that blisters and tears from even the slightest friction. Shirvani’s form of EB is the most severe of its kind - whereby many sufferers don’t live to see adulthood. There is no known cure for the condition. Shirvani claims that when she was just six years old, her school nurse told her that she would never find love or raise children with her skin “the way it is”. Proving doubters wrong, she has since formed a family with her husband and two children. However, going through pregnancy did not come without its unique challenges for Shirvani. Recalling her first c-section, she said: “I had no idea once they put the screen up in front of my face that there was an adhesive sheet that they put over my tummy that went onto my legs, and it stuck to the skin. They ripped the sheet and of course they've ripped with it all of the skin. So my entire abdomen right up until my legs was completely raw. I was lying there with no skin on my body whatsoever.”