Wiggle Rooom in People & Systems: a Necessary Part of FASD Life

In this thought-provoking episode of Living with FASD, host Patti Kasper continues her engaging Meliorist Mondays series with guests Jodee Kulp and Antonia Rathbun Lindsay. This week, they delve into the concept of "wiggle room" in both life and the systems that support individuals with Fetal Alcohol Spectrum Disorder (FASD).

The conversation highlights the significant time lag—often 17 years—between scientific discoveries and societal acceptance, demonstrating this in the recent passage through the US House of Representatives of the long-fought-for FASD Respect Act. The trio reflects on the challenges faced by families navigating complex systems, emphasizing the need for adaptability and understanding within medical and social frameworks.

Listeners will gain insight into the importance of effective communication and the necessity of presenting data in a manner that resonates with professionals. The discussion also touches on the personal experiences of the Meliorist Team members, illustrating the struggles and triumphs of advocating for loved ones in a world that often lacks awareness about neurodiversity.

This episode is essential for anyone looking to understand the intricacies of living with FASD and the importance of community, research, and personal narratives in driving change. Join Patti, Jodee, and Antonia as they navigate these vital conversations and inspire listeners to embrace the wiggle room in their own lives.

As always, please remember to like, share, and follow the Living with FASD podcast to help spread awareness and understanding.

If you would like to reach Patti, you can email her at livingwithfasdpodcast@gmail.com. Visit her website at www.patriciakasper.com to learn more about her coaching and professional development training services. To order Sip by Sip: Candid Conversations with Adults Living with FASD, go to books.by/yourfasdcoach

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