WTH Ep 10 Lori Valenti Webb

summary:
(Links to some support groups)

https://www.facebook.com/groups/COVID19survivorcorps/

https://www.facebook.com/groups/CV19supportgroup/

https://longcovidfamilies.org/advocacy

https://www.facebook.com/groups/longcovid/

https://www.facebook.com/groups/nzlongcovid/

https://www.facebook.com/groups/longcovid/about/?locale=ga_IE

https://www.facebook.com/groups/bipocwomenlongcovid/

https://www.facebook.com/LongCovidPage/

https://www.facebook.com/groups/longcovidkids/

https://www.facebook.com/groups/c19lap/

https://www.facebook.com/groups/COVIDLongHaulers/

https://www.facebook.com/groups/covid19researchinvolvementgroup/

https://www.facebook.com/groups/longcovid/discussion/preview/?_rdr

https://www.facebook.com/groups/920314451799658/

https://www.facebook.com/groups/floridalonghaulers/

https://www.facebook.com/groups/utcovidlonghaulers/

https://www.facebook.com/groups/healingmecfs/

https://www.facebook.com/groups/1284488855296648/

https://www.facebook.com/groups/longcovidsupportforenduranceathletes

https://www.facebook.com/groups/786466028732617/

https://www.facebook.com/groups/metrodetroitcovid19support/

https://www.facebook.com/groups/www.facebook.comgroups373920943948661covidcaregrou/

In this episode, Emily and Lori discuss Lori's extensive health journey, including her experiences with POTS, autoimmune disorders, and the impact of COVID-19 on her health. They explore the challenges of navigating the healthcare system, the struggles of long COVID, and the importance of support and community during health crises. Lori shares her personal reflections on the healthcare system and the need for better understanding and treatment of chronic illnesses. In this conversation, Emily shares her profound experiences navigating the complexities of the healthcare system while dealing with chronic illness and long COVID. She discusses the ethical failures within healthcare, the challenges of finding effective treatments, and the financial burdens associated with chronic illness. Emily emphasizes the importance of patient advocacy, support systems, and integrative approaches to health, while also exploring new treatment options and the role of community support in recovery.
takeaways
Lori experienced severe health issues after contracting mono.
POTS and sarcoidosis significantly impacted Lori's life.
COVID-19 exacerbated Lori's existing health conditions.
Navigating the healthcare system can be incredibly challenging.
Support groups provide essential community for those with long COVID.
Lori's experience highlights the importance of empathetic healthcare providers.
Many patients feel dismissed by the healthcare system.
Long COVID presents a variety of symptoms and challenges.
Lori emphasizes the need for better funding and research for chronic illnesses.
Personal support systems are crucial for recovery and coping. Emily's experience highlights the ethical failures in the healthcare system.
Chronic illness can lead to significant mental health challenges.
Finding effective treatment often requires persistence and advocacy.
Long COVID presents unique challenges that are still being understood.
Financial burdens of chronic illness can be overwhelming for patients.
Support systems are crucial for navigating health challenges.
Integrative approaches can complement traditional medicine.
New treatment options are emerging for chronic illness management.
Community support plays a vital role in recovery.
Advocacy is essential for patients facing complex health issues.
titles
Navigating Health Challenges: A Personal Journey
From POTS to Long COVID: A Survivor's Story
The Impact of COVID-19 on Chronic Illness
Finding Support in the Healthcare Maze
Understanding Autoimmune Disorders and Their Effects
The Importance of Community in Health Recovery
Reflections on the Healthcare System and Patient Advocacy
Sound Bites
"I thought I was dying."
"I got pretty sick and got sicker."
"I was very lucky with my doctor."
"I started having heart arrhythmias."
"It was an absolute living nightmare."
"I was housebound during the summer."
"I had the most caring primary care physician."
"I went through $160,000 in 18 months."
"I have seen so many people so desperate."
"We have a lot of work to do in our healthcare system."
"It was just unethical on so many levels."
"The whole thing was so dumb and ridiculous."
"I was just not in a good space."
"I have PTSD, like you could not believe."
"It's important to have the support system."
Chapters
00:00
Introduction to Health Challenges
02:20
Understanding POTS and Autoimmune Disorders
05:41
The Impact of COVID-19 on Health
10:56
Navigating the Healthcare System
18:02
The Struggles with Long COVID
26:31
Finding Support and Community
32:45
Reflections on Healthcare and Personal Journey
39:47
The Impact of Healthcare System Failures
42:31
Navigating Personal Health Challenges
45:55
The Struggles of Finding Effective Treatment
51:30
Understanding Long COVID and Its Implications
56:47
The Financial Burden of Chronic Illness
01:01:24
Advocacy and the Importance of Support Systems
01:06:29
Integrative Approaches to Health
01:10:20
Exploring New Treatment Options
01:15:58
Community Support and Future Conversations