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Sacral Agenesis Doesn’t Stop Me Living My Life | BORN DIFFERENT
6 years ago
716
Born Different
Sacral Agenesis
congenital disorder
Caudal Regression Syndrome
rare medical condition
back pain
walking on hands
disability
Phoenix Arizona
DESPITE being born with a rare condition that attacked his lower spine – Ernie Ibarra continues to father two children and live his life to the full. Ernie, 30, was born with Caudal Regression Syndrome, otherwise known as Sacral Agenesis. Affecting just one in 25,000 births, the congenital disorder prevents Ernie from using his legs – he has to walk with his hands. Ernie was also born with just one kidney that functions at 30 percent and he suffers with constant back pains. In spite of the shocking adversity his condition has brought over the years, Ernie, who lives in Phoenix Arizona, works a full time job and strives to be the best father and husband for the sake of his family.
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