My Mom's in ICU for 46 Days Ventilation&Tracheostomy, ICU Wants to Stop Treatment, We Want Her Home!

https://intensivecareathome.com/my-moms-in-icu-for-46-days-ventilation-tracheostomy-icu-wants-to-stop-treatment-we-want-her-home/

My Mom's in ICU for 46 Days Ventilation & Tracheostomy, ICU Wants to Stop Treatment, We Want Her Home!

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Hi, it’s Patrik Hutzel from intensivecareathome.com where we provide tailor-made solutions for long-term ventilated adults and children with tracheostomies at home and where we also provide tailor-made solutions for hospitals and intensive care units at home whilst providing quality care for long-term ventilated adults and children with tracheostomies at home. We also provide care to otherwise medically complex adults and children at home including Home BIPAP (Bilevel Positive Airway Pressure), Home CPAP (Continuous Positive Airway Pressure), home tracheostomy care when adults and children are not ventilated, also Home TPN (Total Parenteral Nutrition), home IV potassium infusions, home IV magnesium infusions as well as IV antibiotics at home. We also provide port management, central line management, PICC (Peripherally Inserted Central Catheter) line management, Hickman’s line management, as well as palliative care at home and also including ventilation weaning.

We are also providing our critical care nurses for home care to avoid emergency department readmissions. So besides keeping ICU beds empty, we also keep emergency department beds empty by sending our critical care nurses into the home for PEG (Percutaneous Endoscopic Gastrostomy) tube changes, nasogastric tube changes, tracheostomy tube changes, catheter changes, even we’ve changed casts at home and other things to keep emergency departments empty.

Today, I have an email from James who says,

“Hi Patrik,

My mom is currently in ICU, and she has been there for 46 days. We keep pushing back to the ICU to take her off all medications so she can participate in the physiotherapy and occupational therapy and the breathing trials because she is on a ventilator with tracheostomy and has been for 46 days now.

But as soon as the visiting hours are over, they tend to load her up with the medications and she’s basically back to square one until she receives dialysis which clears her system and she’s more interactive then. Within five minutes of her tracheostomy surgery, we more or less had a case manager in our room with my mom explaining that she won’t be able to get off the ventilator. That’s not what we’ve been promised before doing the tracheostomy. The tracheostomy was always meant to be a vehicle or a conduit to get her off the ventilator.

And then, they said, “We should move her towards comfort care.” We’ve convinced them to move away from comfort care because we want her to get better and she wants to get better. They have been mean and disrespectful to my wife and I ever since. Mom has made strides, but we’d rather get her transferred to home, we’ll get her weaned off the ventilator at home and pursue rehabilitation as she’s now, like I said, 46 days in ICU.

Any advice on how to approach this with the hospital she’s at now? We still only seem to be able to deal with the nursing staff, and the doctors only do their roundings early in the morning. If we do catch them to ask questions, it’s by accident as they didn’t see us sitting in the corner of mom’s room and then they try to quickly leave before we can engage them.

From, James.”

James, thank you so much for explaining your mom’s situation in so much detail. Well, clearly the intensive care team has not discussed with you what the next step is, and they just want to let her die, but they’re also trying to avoid you.

Continue reading at: https://intensivecareathome.com/my-moms-in-icu-for-46-days-ventilation-tracheostomy-icu-wants-to-stop-treatment-we-want-her-home/