What's the Best Home Care Option for My Ventilated&Tracheostomy&SMA 17-Year-Old Girl in Australia?

https://intensivecareathome.com/whats-the-best-home-care-option-for-my-ventilated-tracheostomy-sma-spinal-muscular-atrophy-17-year-old-girl-in-australia/

What's the Best Home Care Option for My Ventilated & Tracheostomy & SMA (Spinal Muscular Atrophy) 17-Year-Old Girl in Australia?

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Hi, it’s Patrik Hutzel from intensivecareathome.com where we provide tailor-made solutions for long-term ventilated adults and children with tracheostomies at home and where we also provide tailor-made solutions for hospitals and intensive care units at home whilst providing quality services for long-term ventilated adults and children with tracheostomies at home, also otherwise medically complex adults and children at home including Home BIPAP (Bilevel Positive Airway Pressure), Home CPAP (Continuous Positive Airway Pressure), home tracheostomy care when adults and children are not ventilated, also Home TPN (Total Parenteral Nutrition) . We also provide IV potassium, IV magnesium infusions at home, as well as IV antibiotic infusions at home. We also provide port management, central line management, PICC (Peripherally Inserted Central Catheter) line management, Hickman’s line management as well as palliative care services at home, which also includes ventilation weaning at home.

We are also providing an emergency department bypass service where we send our critical care nurses into the home to avoid emergency department readmissions.

Now, today I have a question from Jennifer who says,

“Hi Patrik,

We are looking for critical care nurses to take care for our ventilator-dependent and tracheostomy, 17-year-old daughter with SMA Type 1, SMA stands for spinal muscular atrophy. We’re needing a 24-hour roster with critical care nurses. Our daughter is still in ICU. She has a NDIS (National Disability Insurance Scheme) plan, and she is allowed to go home with critical care nurses and can leave ICU. We can’t wait because we’ve been stuck in hospital for a really long time.

Can Intensive Care at Home help?”

Absolutely, Intensive Care at Home can help with the situation like that. We’ve been looking after many SMA clients over the years, some of them with tracheostomy and ventilation, some of them without a tracheostomy and BIPAP, but also needing a cough assist machine and having a PEG (Percutaneous Endoscopic Gastrostomy) tube often for feeding.

So, this is absolutely right up our alley. You’ve come to the right place with Intensive Care at Home. We can find you the right team for your daughter to take her home safely from ICU with critical care nurses. So, I can only encourage you that we get on the phone as quickly as possible. I don’t want to make this longer than necessary today because really that is right up our alley.

We’ve been looking after long-term ventilated adults and children with tracheostomies for over a decade now since 2012 here in Australia and we can do the same for you here, Jennifer. We would love to help you. We will find the right staff for you that are the right fit for your family and for your daughter, of course, that can work with her, improve her quality of life at home, make sure she can stay at home predictably and have community access. If that is what you and your daughter want, of course, living the best quality of life at home instead of being stuck in intensive care, which sounds to me like is what’s happening at the moment.

It sounds to me like you’ve got funding in place already, but if you need help with funding, we can certainly help you with that. We’ve been successfully involved with the advocacy for our clients from Day 1.

Continue reading at: https://intensivecareathome.com/whats-the-best-home-care-option-for-my-ventilated-tracheostomy-sma-spinal-muscular-atrophy-17-year-old-girl-in-australia/