30-Yr-Old Daughter's Been in ICU 4 Months, Ventilated&Trachea&Paralysed Diaphragm, I Want Her Home!

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My 30-Year-Old Daughter Has Been in ICU for 4 Months, Ventilated & Tracheostomy & Paralysed Diaphragm, I Want Her Home!

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If you want to know if your daughter on a ventilator with a tracheostomy and cancer can go home on a ventilator with Intensive Care at Home, stay tuned! I will answer that question for you today.

My name is Patrik Hutzel from intensivecareathome.com where we provide tailor-made solutions for long-term ventilated adults and children with tracheostomies at home and where we also provide tailor-made solutions for hospitals and intensive care units whilst providing quality care for long-term ventilated adults and children with tracheostomies at home and also otherwise medically complex adults and children at home including Home BIPAP (Bilevel Positive Airway Pressure), Home CPAP (Continuous Positive Airway Pressure), home tracheostomy care when adults and children are not ventilated, also Home TPN (Total Parenteral Nutrition). We also provide IV potassium, IV magnesium infusions at home, as well as IV antibiotic infusions at home. We also provide port management, central line management, PICC (Peripherally Inserted Central Catheter) line management, Hickman’s line management as well as palliative care services at home, which includes ventilation weaning at home as well.

So yesterday, I was actually talking to a lady who has her 30-year-old daughter in ICU with a midline glioma and a lesion in her cervical spine. The inflammation from the lesion is causing her needing to be ventilated. The diaphragm is partly paralyzed which makes it very difficult for her to trigger any spontaneous breaths. She also had multiple aspiration pneumonia as part of her ICU stay. The tumor is now stable but apparently inoperable, and she’s had a tracheostomy and she’s had a PEG (Percutaneous Endoscopic Gastrostomy) tube. Her ventilator settings are that in SIMV (Synchronized intermittent mandatory ventilation) mode with a rate of 16 breaths per minute. Apparently, she’s not breathing on top of that. She’s on the PEEP of 10, she is on room air (21% of oxygen), and she’s also on a cough assist machine.

The mother is asking if we can take this young lady home, and I said, “Yes, of course, we can.” It just goes to show that we are well prepared for the complexities of long-term intensive care because clearly, if it wasn’t for our service, those patients would be stuck in ICU long-term. She’s also saying obviously that her daughter is not living a good life in ICU. She is depressed, she has no quality of life, and she can’t wait to go home and take her home as quickly as possible. That’s what we do in Intensive Care at Home.

Pretty much all of our clients with very, very few rare exceptions have community access even in situations like that. We take them out, we’re not confining them to an ICU bed, we are looking at what quality of life can we provide for our clients at home. In 99% of cases that also includes community access, they can live their lives, go out, assuming everything is set up correctly, with hospital beds, wheelchairs, hoists or lifting machines, suction machines, ventilator as monitors, everything needs to be there, of course, all the emergency equipment and more importantly, in order to make a transition safe to a home care environment, a team of 24-hour critical care nurses is needed similar to what your daughter is getting right now in hospital.

Continue reading at: https://intensivecareathome.com/my-30-year-old-daughter-has-been-in-icu-for-4-months-ventilated-tracheostomy-paralysed-diaphragm-i-want-her-home/