Mom’s in ICU on a Ventilator with a Tracheostomy For 2 Months Now & I Want Her to Recover &Come Home

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My Mom is in ICU on a Ventilator with a Tracheostomy For 2 Months Now and I Want Her to Recover & Come Home. What do I do? Please help!

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In today’s blog post, I want to answer a question from one of our clients and the question today is

My Mom is in ICU on a Ventilator with a Tracheostomy For 2 Months Now and I Want Her to Recover & Come Home. What do I do? Please help!

Hi Patrik,

Thank you so much for the information that you have put on your website. It has helped me and my family out so much with my mom being in intensive care on a ventilator with a tracheostomy for two months now.

They wanted to help her wean off the ventilator, but I just feel helpless since they only allow three visits per week and that isn’t right. My mom needs a family to be there for support so she doesn’t feel suppressed, feel depressed or neglected or abandoned by us. If they would allow me to be by her side every day, I would but they don’t call.

And I asked to speak with the doctor so they can check her throat for any damage from the tube from the ventilator she had before the tracheostomy and the doctors and the nurses are not returning my calls. It’s been a week now I called and they take forever to get a nurse on the phone. And even then to answer the nurses station takes a long time.

I feel that they’re not doing too much. They should be working with her every day to help her get off the ventilator and breathe on her own. I asked them when will she get the therapy to get her off the ventilator and the nurse said on Monday, that it will be on Saturday and that’s what they promised me. But on those days she ain’t getting the therapy.

Every day is critical. The more time she will be on a ventilator, the less likely it is she will get off the ventilator. She has had open-heart surgery to replace her atrial valve. And she had a couple of minor strokes after the open-heart surgery.

She recovered from that, she’s diabetic, but when she was living with me, we had her sugar and her weight under control. So that helped her too overcome the surgery and the strokes.

Initially was a big shock, but again, she is improving and she’s following my commands, like squeezing my hands and she’s opening eyes. She is overweight, even though she now lost some weight since she’s been in ICU. Her insulin was reduced before she went into hospital because she had her sugar well under control. So that was a good thing.

But then her kidneys weren’t working well, but from many weeks now of antibiotics, it got better. She recuperated from that as well. And then she ended up with sepsis in the ICU, after she had open-heart surgery.

She got better from that as well when she was on antibiotics for almost six weeks. But it’s now been over two months since she’s in ICU. Then her lungs had fluids and they did a bronchoscopy. They helped to get the fluids off the lung. They gave her diuretics, but it was all part of her kidneys failing as well.

Then, after she couldn’t come off the ventilator when she had fluids in the lungs, after the open-heart surgery, she ended up with a tracheostomy and here we are two months later, we’re still not getting off the ventilator.

It feels like everything is on hold now. And I feel like my mom is really trying not to give up, but the doctors and the nurses are not really trying hard enough to get her off the ventilator and that keeps my mom’s recovery on hold and in danger.

I feel that if they would be putting in more effort in helping her every day and allowing me and my other family members to be there by her side, helping her, she would be off that ventilator a long time ago...

Continue reading at: https://intensivecareathome.com/my-mom-is-in-icu-on-a-ventilator-with-a-tracheostomy-for-2-months-now-and-i-want-her-to-recover-come-home-what-do-i-do-please-help/