The ICU Team Is Thinking Negative About My Dad’s Condition. How Do We Deal With It?

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The ICU Team Is Thinking Negative About My Dad’s Condition. How Do We Deal With It?

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Hello Patrik,

Many thanks Patrik. I’ll request a copy of the CT brain scan report today and will then be in touch re: booking a convenient time to talk. I’ll just need to arrange for my 1 year old to be looked after so that we can talk in peace!

The ICU team have continually asked us do we think Dad would find life post illness acceptable. They said it would be an institutional life in a hospital setting, on permanent oxygen support. That he would likely be in a wheelchair and not be able to walk far. That he would need personal care.

Our response to that was that we felt Dad would accept an altered life as long as he had cognitive function – if he could read, watch films, see his partner, children and grandchildren, have visitors etc. He is psychologically a very strong person and we felt he would choose life over the alternative. In other words, we felt he could live with lung failure, but would not want to live with brain failure.

They said ok.

In recent weeks they have put the question again, saying, we don’t think your Dad will be able to eat or drink if he survives this (risk of aspiration?) and may not be able to have a speaking valve on his tracheostomy. This has worried all of us, but particularly my Stepmom.

The consultant said yesterday “so we only have one facility in the county that could house your dad or he would have to stay in ICU.

Continuation...
https://intensivecarehotline.com/questions/the-icu-team-is-thinking-negative-about-my-dads-condition-how-do-we-deal-with-it/