Samantha Smith Needs To Raise £200,000 To Pay For Life-Saving Surgery

SaveSamanthaPublished: June 9, 2017Updated: June 12, 201717,942 views
Published: June 9, 2017Updated: June 12, 2017

Samantha Smith is a 30-year-old single mom of two who has been battling with an ill-diagnosed genetic condition her entire life. After 8 years of tests, Samantha found out that she has Ehlers Danlos Syndrome (EDS), which is a disorder of the connective tissue that affects all the connective tissues throughout the body, causing Samantha’s joints to dislocate, as well as other issues.

The EDS recently caused Craniocervical Instability in Samantha, which means that the ligaments in her neck are too weakened to support her head, causing her skull to compress her spinal cord. This new condition has stripped Samantha of her independence.

There are no EDS qualified surgeons in the United Kingdom to help Samantha, so she is looking for help to travel to the USA and undergo a procedure that has been developed with 95% success rate!

Samantha Smith is a very brave woman. She had to deal with EDS throughout her life which is challenging enough as it is and on top of that she is also a single parent who is raising 2 children! She is so brave and inspirational as she keeps pushing forward! She sets an amazing example for all of us to follow. Life will get tough and you will be faced with many unexpected challenges, but if you keep pushing through and persevering, you will break through the darkness and emerge in the light!

Please share this video with your friends and help this young mother get healthy and strong again for her children!

Follow Samantha on Facebook: https://www.facebook.com/SavingSamantha/

Recommend tags
  • savesamantha+1
  • ehlers danlos syndrome+1
  • eds+1
  • cci+1
  • fundraising+1

savesamanthaehlers danlos syndromeedsccifundraising

Comments

21 comments

  • 3 rumbles
    lilly699 · 18 weeks ago

    SPAMMER >:(

  • 5 rumbles
    BlackDeep · 18 weeks ago

    First I am letting you know that I have given you a minus which puts you at a -4. Then I will personally let you know that I think you are a lowlife moron. Third, I'm going to your sight and trash it. Have a good day.

  • -1 rumbles
    Death_at_the_Door · 16 weeks ago

    I thought the UK had this great healthcare system? Guess not!

    • 2 rumbles
      Foxhound · 16 weeks ago

      In an article about a single mom who needs dire medical help so she regain the ability to take care of her children, you decide to make this into a political issue? The hell is wrong with you man? Are non-Americans not people? Get over this right vs left, Obama vs Trump, Libs vs Conservatives bs and just be a decent human being. You can choose to help this poor woman and get the word out or literally just do nothing, but don't sit there and kick someone when they're down.

      • 1 rumble
        Death_at_the_Door · 16 weeks ago

        just pointing out the fact that, what we hear in the U.S. that pertains to how great one healthcare system is over another and when that healthcare system isnt that great, we are lied to.. what's the matter, is people like you will never understand the concept of being lied to... Also, with all the hype from the Lieberal side and I spelled Lieberal as it pertains to "lying liberals", preaches how bad people need healthcare, it seems as such in the case of this poor woman, that they never come to the aid of what they preach.. they would rather Grand Stand. which I NEVER MENTIONED ANYTHING ABOUT POLITICS, YOU brought it up! And, by my guess you never did anything to help her, you would rather Grand Stand and make an assault on me not helping and politics..

        • 3 rumbles
          anonamouse · 16 weeks ago

          The greatness of the system is that it's universal, not necessarily that it's the cutting edge. You're still slanting it into a POLITICAL statement... "how great one healthcare system is over another"... that's politics.

        • 1 rumble
          SaveSamantha · 16 weeks ago

          Thanks. Please check my comment below :)

        • 2 rumbles
          ivebeenupfordays · 16 weeks ago

          You're the type of person who takes 2 types of Chocolate Milk, one which has far more vitamins and nutrients and is much healthier, and the other which you drink has 2% more Vitamin D and you go around being like "WOAH MAN BUT MINE'S BETTER CAUSE IT'S GOT LOADS MORE VITAMIN D" Yes, a few things about American healthcare are good and not so bad. That doesn't take away that much of it is horrifying and that tens of thousands die because they have no healthcare or non-adequate healthcare when we could easily afford it being the richest country on Earth and the fact that 60+ other countries provided better quality care for less per person with "overall" superior outcomes.

      • 1 rumble
        SaveSamantha · 16 weeks ago

        Thanks :) please check my response below

    • 1 rumble
      Reality_Check · 16 weeks ago

      Ignoring how much of a prick you're being, I'll educate you. Ehlers Danlos is actually an extremely rare disorder and I have a friend with it. I live in the Bay Area of California which arguably has the best medical care available in the entire world. We have the best VA hospital in the country (SF), two of the top 10 medical schools in the entire world (UCSF & Stanford), and extensive socialized healthcare for all residents. There's an extremely small percentage of doctors in the entire world that are familiar with the disorder, meaning they actually understand it's nature and don't have to look up studies or treatments in databases. My friend has gone through dozens of doctors trying to find one who actually knows about EDS. These are all doctors that have graduated from Stanford, UCSF, Ivy Leagues, and universities abroad (Oxford, Cambridge, etc.). Hell I have Tourette's Syndrome which is a lot more common and I have an extremely difficult time finding doctors who know how to treat it, and there's only a couple facilities in the entire country that are equipped to perform the only known surgery to possibly cure it (Deep Brain Stimulation). This is a country of 350 million people, and we're still ill-equipped to deal with many disorders on a local scale. Criticizing Britain for not being equipped to perform a surgery needed by probably a few dozen people worldwide is glaringly ignorant and misinformed. Many medical disorders are extremely complicated and very rare.

    • 0 rumbles
      Reality_Check · 16 weeks ago

      I'll add one more thing. The surgery I mentioned that is the only known one to drastically alleviate/"cure" Tourettes Syndrome is not covered by ANY American insurance company at all. Yeah, that great privatized American healthcare system people like to rave about! It is a $150,000 surgery OUT OF POCKET, and due to the costs of the surgery most American doctors will advise against it unless the motor tics pose a serious threat to your health. The only way to get it paid for by another entity is to be sponsored by a third party organization/charity, and they usually only sponsor children.

      • 1 rumble
        SaveSamantha · 16 weeks ago

        Please check my response below. :) thanks

      • 2 rumbles
        Death_at_the_Door · 16 weeks ago

        again you are missing the big picture, my statement has nothing to do with her degenerative disease.. i feel for her as i stated.. it has to due with what we are being led to believe (LIED).. now Japan is being compared to the U.S healthcare.. all the lieberal media shows is the cover or the part to make people Believe everything is covered and there are no costs.. to put it in your words.. people are glaringly ignorant and misinformed to believe everything is covered..

  • 2 rumbles
    Deedub · 16 weeks ago

    I feel very sorry for poor Miss Smith, but I have some questions. First, what is the procedure that is supposedly 95% successful? Second, EDS is a genetically-caused group of diseases. How can surgery cure a genetic disease? Third, who is the EDS specialist who is promising to treat Miss Smith? The National Institutes of Health and the Mayo Clinic both say surgery is rarely indicated for EDS and it is not a cure. http://www.mayoclinic.org/diseases-conditions/ehlers-danlos-syndrome/basics/definition/con-20033656 https://rarediseases.info.nih.gov/diseases/6322/ehlers-danlos-syndromes Why does this fundraiser claim there are no EDS specialists in the UK when in fact there are? http://www.nhs.uk/conditions/ehlers-danlos-syndrome/Pages/Introduction.aspx http://www.lnwh.nhs.uk/services/a-z-services/e/ehlers-danlos-syndrome-national-diagnostic-service/ Here's what I worry about: the 1st Amendment of the US Constitution gives stronger freedom of speech than in most countries - including "commercial speech," i.e., advertising. This means US doctors (and other licensed professionals) are allowed to make claims that professionals in other countries are not permitted to make. It's easy for people in countries where professionals are not allowed to "puff" their great services to take literally claims made by US businesses, including doctors. If I or my family member were suffering from a terrible disease like EDS, I would be very tempted to make a leap of faith to get help. However, with no citation to the doctor offering to perform surgery, or the nature of the surgery, or the peer-reviewed research that supports this treatment modality as safe and effective, my "Nigerian 419" alarm bells go off.

    • 1 rumble
      SaveSamantha · 16 weeks ago

      As 'samantha' the lady in the story I'd like to take some of my little energy to respond to this comment for two reasons; 1) you have taken the time to try to study the condition and understand the limitations, albeit to question my authenticity, however, still a person willing to try to educate themselves on EDS is a blessing... 2) your claims are incorrect, therefore it's my responsibility to educate you more clearly... EDS can NOT be cured. I have never and would never make such a claim. EDS has cause many, many co-morbid conditions in myself as it often does in sufferers... these co-morbidities CAN be treated. It is very very rare to find a specialist in the NHS OR PRIVATE who know how to treat the no -life threatening conditions associated with EDS... never mind a neuro-surgeon who has an wealth of understanding about this specific Connective tissue condition and the ways in which the co-morbidities and multi systematic nature of the illness complicates surgical procedures. In my case the problems caused by EDS which are now threatening my life and have taken away the life I had are called CCI &AAI. They CAN successfully be operated on. I am currently in Washington DC thanks to the success of my fundraise so far. Whilst here, if I have enough funds in time then I will have the first stages of my surgery on the 11th July. This surgery will fuse my skull & cervical spine down to my thoracic spine to stabilise them and remove the risk of internal decapitation. My surgeon will also decompress my brain stem and spinal cord. He will also fix the tethered cord in the same surgery.

      • 2 rumbles
        SaveSamantha · 16 weeks ago

        These surgeries may be available at a high risk for the general population but for an EDS sufferer the risks are far, far greater for many reasons which I would encourage you to research yourself. I have many surgeries to follow...each with high risks and - personally- a very high fear... as my body will be limited for life- but my life will then no longer be at risk... which is the goal here.... the goal with a 95% success rate. I will always suffer EDS and any issues it chooses to throw my way... however, this one in particular will be managed and I will get back to life as a mother, a therapist and a happy young lady in the prime of her life (albeit in constant pain, but that's never been something I'd allow to stop my life's aspirations) .... Feel free to read my youcaring page or google 'save samantha' for more details on my specific case. Thanks to all who have commented to correct this member, I realise these comments fuel frustration and annoyance for many but education is the best antidote to assumed ignorance... and positivity and kindness is the best antidote to pain. 🙏🏼

        • 0 rumbles
          Death_at_the_Door · 16 weeks ago

          I have no problem with her, getting surgery she needs and If I had the means I would pay for it, I have degenerating discs in my neck (C-1, C-2 and C-3) and no doctor wants to touch it... nothing better than feeling pain and bone rubbing against each other. which raises my blood pressure which Im told to do all these exercises and foods to eat meanwhile my blood pressure rises because everything they told me to do is not bringing down my blood pressure, for some reason they dont get it the pain in the Atlas region is causing it to rise..... my issue is, in the states we are led to believe every other nation has better healthcare and people are fully covered, which is not the case Such as Samantha's is one of them and now there is a baby in the U.K. getting ready to have the plugged pulled on it and the parents need money for specialty care in the U.S... my statement was being sarcastic to the lieberals in the U.S. and meant no ill will towards Samantha..

  • 0 rumbles
    craigb · 15 weeks ago

    http://www.mayoclinic.org/diseases-conditions/ehlers-danlos-syndrome/basics/treatment/con-20033656

    • 1 rumble
      Blair · 14 weeks ago

      Or rather, the NHS.

  • 1 rumble
    youareboring · 15 weeks ago

    No good surgeons in the UK, doesn't surprise me.

    • 0 rumbles
      Blair · 14 weeks ago

      They have the best surgeons in the UK you idiot. What the fuck are you on about? The NHS is better than your country's healthcare system, it would surprise you if there were good surgeons in the US, not the UK. Talk shit again, and i'll put you in your place again.