This Boy's Skin Grows Too Fast, Puts Him At Great Risk | BORN DIFFERENT

BarcroftTVPublished: December 21, 20166,328 views
Published: December 21, 2016

Five-year-old Evan Fasciano’s condition causes his skin to grow at ten times the normal rate, leaving him at risk of life-threatening infection. Evan, from Goshen, Connecticut, was born with Harlequin Ichthyosis, a genetic skin disorder inherited at birth, it is a condition that affects his skin and makes it very thick, which leaves him with scales across his entire body.

Suffering from the severest form of the disease, Evan is at constant risk of infection, requiring him to have two baths a day when his mom scrubs the excess skin. Currently there is no cure for Harlequin Ichthyosis, but despite his condition Evan is a lively, happy child, who is incredibly popular at school and loves to play with his younger brother Cenzo.

Evan was delivered nine weeks early and spent his first 58 days in hospital, he was diagnosed two days prior to birth, and parents hadn't heard of this disease before. He is the only one in his family who suffers from this disease.

There is no cure for the condition, so Evan follows a strict regime to manage his symptoms. He can't sweat, so he can overheat very easily, and get heat stroke or seizures, so he needs a constant intake of fluids.

People sometimes make bad comments, but parents try their best to stay positive. Evan is sometimes shy when people in public stare at him, but his parents don't want him to react negatively.

Videographer / director: Steven Schloss
Producer: Tom Midlane, Ellie Winstanley
Editor: Jack Stevens

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