My 37 Year Old Daughter Has Been in ICU for 3 Months with a Tracheostomy! Can She Go Home?

https://intensivecareathome.com/my-37-year-old-daughter-has-been-in-icu-for-months-with-a-tracheostomy-can-she-go-home/

My 37 Year Old Daughter Has Been in ICU for 3 Months with a Tracheostomy! Can She Go Home?

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Hi, it’s Patrik Hutzel from intensivecareathome.com, where we provide tailor-made solutions for long-term ventilated adults and children with tracheostomies. And where we also provide tailor-made solutions for hospitals and intensive care units, whilst providing quality services for long-term, ventilated adults and children with tracheostomies, but also otherwise medically complex patients in the home on BIPAP (bilevel positive airway pressure), CPAP (continuous positive airway pressure), Home TPN (Total Parenteral Nutrition), IV fluids, IV antibiotics. We do all of that. We’re basically sending intensive care nurses and ED nurses into the home for long-term intensive care patient. It also includes palliative care and end of life care.

Now, in today’s blog, I want to answer another question from one of our readers and the reader writes, “My 37-year-old daughter has been in ICU on the ventilator for three months. They have inserted a tracheostomy and now they have taken her off the ventilator in the last couple of weeks, only giving her oxygen through the tracheostomy tube in her throat. My biggest concern is she is not waking up and can she go home? I am getting very sick of being in ICU with my daughter. It’s been over three months now and I simply don’t have any quality of life and of course, neither does my daughter. No one has any quality of life in this. And I want her at home as quickly as possible. Is this possible? We are in Brisbane, Australia.”

Now, first of all, yes, this is a very good opportunity for your daughter to go home after about three months in ICU. Now, as you’ve correctly identified, your daughter has no quality of life. She has no quality of life and she is, probably not making any progress by the sounds of things. So you therefore, need to get the wheels in motion to get her home. And I’m so glad you’ve reached out to us, especially with your daughter being so young. She will qualify for NDIS (National Disability Insurance Scheme) funding for nursing care at home.

So, the next step really is to contact us directly, send us an email or contact us. Call us on one of the numbers on the top of our website. But the bottom line here is this, your daughter going home is bread and butter for us. We can set up the home for her with a tracheostomy. She will need 24-hour nursing care and she can hopefully wake up at home, because she hasn’t woken up in ICU doesn’t mean she won’t wake up and she needs the right support structure at home with 24-hour intensive care nurses to manage the tracheostomy. And also help her to wake up. She will need OTs, she will need physiotherapist, she will need the team to help her improve her quality of life at home and let her wake up at home.

Continuation...
https://intensivecareathome.com/my-37-year-old-daughter-has-been-in-icu-for-months-with-a-tracheostomy-can-she-go-home/