I Want to Take My 33 Year Old Daughter Home From ICU on a Ventilator and Tracheostomy, Help!

https://intensivecareathome.com/i-want-to-take-my-33-year-old-daughter-home-from-icu-on-a-ventilator-with-tracheostomy-help/

I Want to Take My 33 Year Old Daughter Home From ICU on a Ventilator and Tracheostomy, Help!

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Hi, it’s Patrik Hutzel from Intensive Care at Home, where we provide tailor-made solutions for long-term ventilated adults and children with tracheostomies. And where we also provide tailor-made solutions for hospitals and intensive care units whilst providing quality services for long-term ventilated adults and children and medically complex patients at home including BiPAP (bilevel positive airway pressure), CPAP (continuous positive airway pressure) and Home TPN.

In today’s blog post, I want to answer a question from one of our readers who has their 33-year-old daughter in ICU and is thinking about taking her daughter home from ICU on a ventilator with a tracheostomy.

Let me read out the email from Nancy. Nancy says, “My daughter has been ventilated four times within a period of two months. She initially was intubated then extubated, was sent home and then returned back into ICU within less than 36 hours. She’s now back in ICU on a ventilator with a tracheostomy and a feeding tube and now her kidneys are not working. And I feel like the hospital wants to kill her and I’m fighting for her life and I really want to take her home. This morning, they told me that they had to bag her with a resuscitation bag because the tracheostomy had moved and blocked the airway and it also started bleeding. Please help me because I feel like the ICU is not doing what they can do and it feels like they’re trying to kill my child. Now, she has been ventilated four times within the span of three months. And with the kidneys not working, can I take her home?”

Ok, Nancy, I’m very sorry to hear about your daughter’s situation, but I do believe there is light at the end of the tunnel. We have looked after clients at home. They had regular tracheostomy bleeds as a matter of fact, and we manage them successfully at home. So, taking your daughter home on a ventilator with a tracheostomy, if that is your wish, and if that is your daughter’s wish, especially at such a young age, you should contact us as a matter of urgency and we have done that already via email, but you should call us as a matter of urgency so we can take the next steps with you and the intensive care team and take your daughter home because that’s where she might need to go next in order to recover from, the ICU stay. I mean, ICU stays are not conducive at the best of times.

So, maybe going home will help your daughter dealing also with the psychological trauma that you and your daughter have sustained with this ICU stay where she was ventilated four times. And now finally has a tracheostomy and is having a feeding tube as well. He didn’t specify whether she has a nasogastric tube (87) or a PEG (Percutaneous Endoscopic Gastrostomy) tube. But in either case, we can take you to the home.

Continuation...
https://intensivecareathome.com/i-want-to-take-my-33-year-old-daughter-home-from-icu-on-a-ventilator-with-tracheostomy-help/