Can My 20 Year Old Son be Weaned Off the Ventilator and Tracheostomy at Home?

https://intensivecareathome.com/can-my-20-year-old-son-be-weaned-off-the-ventilator-and-tracheostomy-at-home/

Can My 20 Year Old Son be Weaned Off the Ventilator and Tracheostomy at Home?

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Hi, it’s Patrik Hutzel from Intensive Care at Home, where we provide tailor-made solutions for long-term ventilated adults and children with tracheostomies and where we also provide tailor-made solutions for hospitals and intensive care units, whilst providing quality services for our clients as well as home BiPAP (bilevel positive airway pressure), home CPAP (continuous positive airway pressure), home VPAP (variable positive airway pressure), and otherwise medically complex patients at home, including home TPN (Total Parenteral nutrition), IV fluids and IV antibiotics.

Now in today’s blog, I want to answer a question from one of our readers. And it’s a question that is very close to our hearts, really, and it’s very close to the services we are providing.

Hi Patrik,

My son, he’s 20, is minimally conscious and he’s on a ventilator at home. We only have help from his ventilator company, and they have minimal engagement, mostly to change ventilators. I was wondering if your company offers any support for ventilation and tracheostomy care at home and including weaning.

Thank you so much.

From Nikki

Hi Nikki,

I’m very sorry to hear about your 20-year-old son’s situation. So this is obviously right up our alley. We can help you with 24-hour intensive care nursing at home, which is what your son needs to have really, and I can see from your email without giving too much away that you are in Australia.

So, in Australia in particular, this should be NDIS (National Disability Insurance Scheme) funded or should be funded if this happened because of an accident, maybe there’s some other compensation. But in any way at your son’s age, this should be NDIS funded and you should contact us for NDIS funding so that your son gets best and evidence-based care.

Now Nikki, when you look on our website at intensivecareathome.com, you will find a section, the Mechanical Home Ventilation Guidelines. And they are evidence based and they are a result of nearly 25 years of Intensive Care at Home nursing in Europe, mainly in Germany, but also here in Australia in the last 10 years. And those mechanical home ventilation guidelines say that anybody at home on a ventilator with a tracheostomy, but even without a tracheostomy, if they’re on BiPAP or on CPAP, non-invasively ventilated, need to have a critical care nurse with a minimum of two years ICU experience or pediatric ICU experience. And that’s exactly what we are providing here at the Intensive Care at Home.

We actually provide evidence-based care. And with that evidence-based care, our clients are safe. It sounds to me like, your son’s life is really at high risk. Unfortunately, we have witnessed first-hand that when our clients were only funded for night shifts, for example, even though they were on a ventilator with a tracheostomy, and I’m not making this up here, they passed away during the day because family members or support workers, could not manage medical emergencies.

When someone is on a ventilator with a tracheostomy, they need ICU nurses 24 hours a day, just like the mechanical home ventilation guidelines suggest. They are evidence and research based.

Continuation...
https://intensivecareathome.com/can-my-20-year-old-son-be-weaned-off-the-ventilator-and-tracheostomy-at-home/