autismmybrotherskeeper

my son Brian is being discharged from the hospital today. About 2 - 3 weeks ago it was his 22nd birthday. He never got to celebrate it. He kept going into status epilepticcus. U.P. hospitals seemed to be trying to kill him instead of help him. So I stuffed him in the vehicle and drove 6 hours away to another hospital. One I thought could handle it, if trying to kill hurting folk isn’t everyone’s thing. Hard to tell with the bat crap crazy covid stuff going on today. He was flat on his back for the ENTIRE time. NOW, he is finally stabilized and going home alive. He was surely at death’s door and going to die from status epilepticcus. The Bible tells us “the issues (escapes) from death belong to God”. Thank You Jesus!

b is positioning in his sleep. Positioning is a symptom of catatonia. There may or may not be some minimal seizure activity in the mix.

Positioning in catatonia

The inability to cross thresholds is a symptom of catatonia, This video is about my son b getting a little victory over that. The inability to cross thresh holds is a symptom of catatonia. My son Brian had neuroleptic malignant syndrome which is a form of catatonia and -well it is just chronic catatonia now that we deal with which NMS started. AT B's baseline he only has classic autism. He incurred this catatonia from taking risperidone in order to attend public school at his doctor's direction -age 12. We are an autism family basically. Normally discretion abounds in our family life but because I've had so many struggles finding proper medical help. Because there are others struggling just like us who may search for videos trying to see is anyone else experiencing this? Because there needs to be a documentation of some seizures so his neuro can be that hero. And on it goes, so I started this channel and the same content on youtube -the link to the channel and video there is below. #autism #catatonia #NMS #nms #crossingthreshholds