S6E7: Does Relief have a New Contender? | Julie's Substack: "My Probably Not-So-Rare Disease"

8 days ago
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S6E7: Does Relief have a New Contender? | Julie's Substack: "My Probably Not-So-Rare Disease"
Dr. Tennant introduced Journavx (suzetrigine), a new non-opioid pain medication approved for acute pain that shows promise for adhesive arachnoiditis, CRPS, and EDS patients

Julie Titone presented her article "My Probably Not-So-Rare Disease" challenging the classification of adhesive arachnoiditis as rare.

Arachnoiditis Hope has developed five treatment protocols now available on their website: Arachnoiditishope.com. Topics include general treatment, spinal fluid leakage, pain flares, emergency treatment after procedures, and Epstein-Barr virus reactivation

Dr. Guess discusses supply chain issues for pain medications remain critical, with no improvement over the past 3-4 years despite DEA attempts to address shortages.
Tune in for more!

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