Atypical Facial Pain, Trigeminal Neuralgia, Nerve Pain, My Story Of Pain And How I Handel It.
Atypical Facial Pain, Trigeminal Neuralgia, and Nerve Pain in the face and head. I developed atypical facial pain one day and I had to learn how to handle living with the pain. My story took 5 months from my first facial pain attack until I was able to return to my life. I did not make this video because I want sympathy from anyone. I made this video for educational purposes. I hope that I can help someone that is dealing with pain the way I was because they watched my story.
My apology: I want to apologies that this video is 2 hours long, and during the video I say "um", "so", "and" a lot. I tried to remove as many of these as possible!
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Cleveland Clinic Website:
https://my.clevelandclinic.org/
Websites with information about facial pain:
https://www.karger.com/Article/FullText/505727
https://www.ninds.nih.gov/Disorders/All-Disorders/Trigeminal-Neuralgia-Information-Page
https://www.ohsu.edu/brain-institute/facial-pain-trigeminal-neuralgia
Chapters
0:00 Intro
6:26 When It all started ER visit #1
17:42 The most painful day of my life ER visits #2 & #3
40:32 How I explain the pain I feel
46:41 What is "suicided disease"
48:30 More Doctor Appointments
51:00 What Is TN and Shingles
57:30 Neurologist
1:01:33 "Its Normal"
1:04:11 Neuro Surgeon
1:06:30 What is a nerve block?
1:08:09 ER visit #4
1:15:03 My meds and the side effects
1:21:25 Nerve block procedure
1:25:17 What is a "MVD"
1:35:40 I need to see a specialist
1:36:57 Cleveland Clinic consultation
1:39:44 Having a "RFA" procedure done
1:46:41 What the "RFA" dose
1:48:34 Reducing my meds
1:52:42 Final thoughts
These are the medications I was on during my experience.
Meds I take for my IBSD, I was taking these meds before my face pain.
Pantoprazole 40mg 1 time a day
Sucralfate 1gm 4 times a day
Meds I was taking for pain by prescription.
Gabapentin 800mg 3 times a day for 2400mg total daily
Trileptal (OXcarbazepine) 300mg 6 a day for 1800mg daily
Norco (hydrocod/acetam) 5-325mg up to 3 times a day
Cymbalta (DULoxetine) 60mg 1 time a day
Lidocaine patch 5%
Over the counter meds I was taking to counteract the constipation from the pain meds.
Docusate Sodium (stool softener) 100mg up to 3 a day
https://amzn.to/3G79mCS
Dulcolax 5mg tablet up to 3 a day
https://amzn.to/3t0lB0u
Gas-X up to 3 chewable tablets a day
https://amzn.to/3zA8zbg
Lidocaine cream 4%
https://amzn.to/3q3YFM3
Meds I could take for upset stomach as needed by prescription.
Promethazine syrup 5 to 10 ml every 4-6 hours for nausea and vomiting
Dicyclomine 10mg 1 pill up to 3 times a day for cramps
Ondansetron 4mg 1 pill every 6 hours as needed for vomiting
This video was recorded on my Moto Z4 cell phone.
https://amzn.to/3zNIsxP
Tripod
https://amzn.to/3JIaeA6
Dry erase markers
https://amzn.to/3G4QsNd
Propane torch
https://amzn.to/3eY0T9d
Propane gas
https://amzn.to/3FgXqNX
3lb hammer
https://amzn.to/3n5JAaO
vacuum sealer
https://amzn.to/3JQ84OX
Video edited with Shotcut
https://shotcut.org/
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